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Travel Insurance plus new issue - can't be MND but....

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    Travel Insurance plus new issue - can't be MND but....

    We have now been told that our postponed holiday will go ahead, later this month, but a) still not had up to date itinerary (changes due to altered Eurostar schedule) b) could not recall if i'd told our travel insurers about my diagnosis.

    I thought i had told our travel insurers - i hadn't. The end of a fairly long telephone conversation, i won't be covered this year for any MND related difficulties. Might be covered in next years renewal, might.....

    No surprises there!

    Both my husband and I suffer from some dizzieness these days; generally caused by getting too quickly....

    Cos it is both of us, i blame our age!!

    Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

    #2
    Good news about the holiday Evelyn.

    Would you get travel insurance from another provider or chance travelling as is, with everything tightly crossed?

    Originally posted by EvelynMW View Post
    Both my husband and I suffer from some dizzieness these days;
    Could it be a virus or vertigo ? xx

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      I had same travel insurer for several years and they fully covered my mnd for a small additional premium. There are ones out there who will x

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        #4
        Fingers crossed for you Evelyn. Can low blood pressure cause you to feel faint when you get up suddenly?? xx
        Diagnosed July 2020, ALS bulbar onset.

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          #5
          Hi Evelyn,

          Its great you're travelling..We have an annual insurance with all clear... its about 250 pounds. They cover me for MND and other associated conditions ( pulmonary embolism and fractures following falls )

          I dont want to spread doom but if you're not covered for MND they could blame it for anything heathwise and wriggle out of paying a claim.... just a thought you might think its worth it. We're not insured if we have to stay longer due to covid but that's OK. Also check your ghic or ehic card is up to date.

          I hope you feel better and less dizzy soon,
          Love Debbie x

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            #6
            Hi Evelyn. I am also with All Clear who cover my MND. I suggest you seek a quote from them and if agreeable take out their insurance and cancel your existing one.

            Richard
            Richard

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              #7
              Thanks for all the advise. As i am almost 100% sure MND won't affect my holiday - i am going to chance it - maybe not next year though!
              Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

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                #8
                Fingers crossed it won’t affect you this year, and hope you have a great time! X
                Diagnosed July 2020, ALS bulbar onset.

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                  #9
                  EvelynMW Evelyn I am not sure that’s a good idea. Ignoring the MND issue what, Lord forbid, you fell over and broke a bone, or was in an accident? That’s what travel insurance is for. I urge you do get a quote and if affordable take out the insurance

                  Richard
                  Richard

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                    #10
                    Hmmm. Defo worth thinking aboutt richard
                    Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

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                      #11
                      Good luck with everything holiday related Evelyn. I hope that you have a fab time and no falls. Love Lynne x
                      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                      I'm staying positive and taking each day as it comes.

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                        #12
                        Get your holidays in early as you don't want to be like me mute and not eating. 🤗😆😘😍xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                          #13
                          richard Looks like my curent insurer, given free with my bank account, cannot cover me - now got to go search for someone who would - links to my other question, they ask which type i have!
                          Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

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                            #14
                            I've never figured out what the difference is but seriously does it really matter. Not that I know much 🤔
                            when i can think of something profound i will update this.

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                              #15
                              Originally posted by denise View Post
                              I've never figured out what the difference is but seriously does it really matter.
                              Yes it does.

                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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