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Purtier Placenta???? Anybody used it in the forum??

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    #1

    Purtier Placenta???? Anybody used it in the forum??

    Hi all
    Very nice to come back to the forum after a long time. Had a very difficult time in Nepal. All the kids flew back from UK to see me and they stuck here for more than 4 months, they just returnedback to UK couple of weeks before only. I was very happy them to be here but son, daughter in law got Covid19, tiny grand daughters are trapped in a room. I was like a caged lion, luckily we all are safe now.

    My wife, elder son & elder daughter in law(from UK), younger daughter in law all got Covid 19. Elder daughter in law stayed hospital for 12 days in ICU. Luckily, I am still safe from COVID19.
    Couldn't go to doctor for follow up. Couldn't go outside from my room for a month. Now very difficult to even stand. Respiration; hardly can breathe, started bipap machine Prisma25s. Bipap made me bit easy, it's third day though.

    Because of pandemic couldn't back to UK, don't think I can come back to UK again, am bit depressed now. Someone talked me about Purtier Placenta. Does anyone know about it? Have you tried, does it have any good results??
    Please share me your experience, if anyone tried.
    Thank you!
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    #2
    You sound a bit down my friend. Sunday is normally a very quiet day on here. So wait until tomorrow. Stay Strong we are here for you. πŸ€—πŸ‘πŸ’—
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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      #3
      Hello SATRUGHNA MANI LAMICHHANE - good to hear from you. Did you get the jab over there? Haven't heard of Purtier Placenta - had to look it up. Take care

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        #4
        SATRUGHNA MANI LAMICHHANE Don't waste your money on Purtier Placenta. If you have spare money, buy a plane ticket or two and bring family over to visit you, rather than line the pockets of people making false claims about their product.

        Love Ellie.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
        ​
        • Likes 2

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          #5
          SATRUGHNA MANI LAMICHHANE so sorry to hear of all the health and other difficulties you and your family have been having, and your position about getting back to UK. Sorry I haven't heard of Purtier Placenta either, sounds like something to avoid from Ellie. Hope you can get some useful help. Love Heather
          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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            #6
            Why can’t you come back to the UK? Is it Priti Patel and her department making it difficult for you or your MND? I wish good luck for you being able to come back to be nearer to your family so will have regular support.

            I too wouldn’t waste yours money on unproven medication. Lynne x
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.
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              #7
              Hi All,
              Thank you all for your kind words. Now difficult to type, got back to the forum after a long time, actually couldn't type password correctly. Luckily, I could type my password today in few attempts.

              I am in New Delhi for my follow up treatment, going back to Kathmandu soon. It's nightmare to fly back to Kathmandu. As you all advised didn't try Purtier Placenta. Tried 70 injection of edaravone but didn't got any better. Now very difficult to breathe. I can't even move on bed. Needs Bipap 18-20 hours a day.

              Good thing is kids and my wife took to to visit Taj Mahal this time. Pictures seems ok but I am really weak now.

              Wish you all the best to you all kind hearts.
              Thank you

              -Satrughna Mani Lamichhane
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                #8
                Hi all
                Love to share picture in Tajmahal.
                Thank you
                • Likes 1

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                  #9
                  IMG20220406175319.jpg Taj Mahal, India
                  • Likes 9

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                    #10
                    Looking good SATRUGHNA MANI LAMICHHANE πŸ‘πŸ‘ Thanks for posting xx
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                    ​

                    Comment

                      #11
                      Oh wow lovely seeing such an iconic landmark with you of course. I'm sorry you are struggling with your hands etc. Hope we hear you from time to time.

                      I remember when I was in the army I would type out the flight passengers flying home to Kathmandu. All like you with very long names. Gurkhas they were.

                      Diagnosed May 2021 bulbar onset als.

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                        #12
                        Love the photo. I remember visiting the Taj Mahal when we toured India and Nepal more than 20 years ago. We toured game parks and saw tigers. We flew into Kathmandu and stayed a few days before going to Chitwan game park where we saw Indian rhino and rode elephants. Wonderful memories. I hope you get the best treatment.
                        Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comes
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                          #13
                          SATRUGHNA MANI LAMICHHANE - lovely photo and good to meet you on here. I hope you manage to make more wonderful memories with your family xx
                          Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                          Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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                            #14
                            What a lovely photo. Wishing you well and lovely to hear from you.
                            😘
                            when i can think of something profound i will update this.

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