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    #1

    Caffeine boost

    Thought you might like to know that Kenco instant keeps you alert longer than NescafΓ©. πŸ‘πŸ˜πŸ€—πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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    #2
    Douwe Egberts is my favourite instant coffee....not sure it's effectiveness in the 'alert' scale tastes great thoughβ˜•β˜•
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      #3
      Sadly taste is not an issue for me
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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        #4
        matthew55 oh that's tough & I'm sorry to hear that...not to taste coffee ever...I'm lucky to be able to still enjoy that pleasure ...for however long. I don't take it for granted.
        I also love that moment when I open a fresh jar and the smell....β˜•β˜•

        Matthew are you able to eat or drink anything by mouth? Reading posts on here seems it's not always 100% one of the other?Hope you don't mind me asking...ignore me if you do πŸ€—πŸ˜˜

        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          I've given up trying food and drink. I can still swallow but my tongue doesn't move this much so getting anything in far enough is a pain. I'm used to it. πŸ˜πŸ€—πŸ˜˜πŸ˜xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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            #6
            Amazes me how you adapt....anyway good to know the coffee helps with alertness....thanks for sharing...take care πŸ€“πŸ˜˜
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​
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              #7
              I am lucky to have a coffee machine, nothing fancy just basic, but def makes coffee high in caffeine, aka bowel bombs πŸ‘πŸ‘
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
              ​
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                #8
                stephen has a coffee machine. its me complete with fag rolling.
                when i can think of something profound i will update this.
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