Urologist

[Mary C]

denise 30 weeks wait for person with MND for PEG replacement seems a long wait especially when we all know a lot of changes can happen in that time.
I don’t know anything about why PEGs might need replacing ? Cant MND or hospice team move that appointment forward ?
best wishes
Mary

[Lynne K]

Thanks Donna. I had an epidural for an operation about three years ago. I don’t get uptight despite it hurts a lot when they put in my bad back. My spinal spaces are so narrow that they have to push very hard between the discs to get their needle in but in the long term it works. Love Lynne x

[denise]

talking about accidents the amount of times i have emptied the bag down the loo but not quite finished off and its gone down my leg. what a way to start a morning.

the fun getting the things off but gather using a hairdryer helps soften the glue (these are sheath contraptions) havent got a hairdryer and was going to suggest using my new vax pet hair cleaner. that should do it. but now have medical glue remover spray. how my life is enhanced.

[Lynne K]

Oh dear, what a fiddly start to your day Denise. I’m glad that you’ve now got adhesive remover spray which is worth it’s weight in gold, Lynne x

[denise]

yeah stephen prefers the glue remover - he's no fun!

[Lynne K]

I had a letter for my pre-op assessment which is 22nd October at 8am. We’ll have to get up at silly o’clock to leave at 7am. But at least the ball’s rolling x

[LindaB]

Good news Lynne K 👍🤗

[Ellie]

Lynne K Busy lady! Hope the appointment goes well. xx

[denise]

Its horrible getting up so early. I hope it goes well and not too tiring. Xxx

[Deb]

Thats good news Lynne K . Although its very hard to be up and out early hopefully it will be worth it. Xx😘🤗

[Olivia H]

Hope everything goes well for you Lynne, and I know a friend of mine had a hip replacement recently with epidural which went really well. I recently had to have a general anaesthetic for surgery, whilst there was the obvious concern 're the MND, my breathing and upper body strength are good and it all went ahead with no problems at all, but an epidural sounds a good option for you x

[matthew55]

Saves sitting around worrying about it though. 😁🤗😘😍xx

[Lynne K]

Thank you all for replying to me and your kind words.

Olivia that’s good that your operation went well despite the breathing worries of mnd. I certainly hope that an epidural will happen but who knows. The Urologist seemed dead set against it.

Love Lynne xx

[Lynne K]

My suprapubic catheter was cancelled from Salford Royal by my neurologist. She said it isn’t safe in a general hospital and has referred me to Wythenshaw where there’s Specialist Breathing Team. I’ll be have one or other type of feeding tube procedure too in Wythenshaw, hopefully at the same in-patient time. I’ve not heard from them yet. I hope not too long to wait.,Lynne

[Ellie]

It might mean a bit of a longer wait Lynne but, as you say, it's for a very valid reason. xx