Urologist

[denise]

talking about accidents the amount of times i have emptied the bag down the loo but not quite finished off and its gone down my leg. what a way to start a morning.

the fun getting the things off but gather using a hairdryer helps soften the glue (these are sheath contraptions) havent got a hairdryer and was going to suggest using my new vax pet hair cleaner. that should do it. but now have medical glue remover spray. how my life is enhanced.

[Lynne K]

Thanks Donna. I had an epidural for an operation about three years ago. I don’t get uptight despite it hurts a lot when they put in my bad back. My spinal spaces are so narrow that they have to push very hard between the discs to get their needle in but in the long term it works. Love Lynne x

[Mary C]

denise 30 weeks wait for person with MND for PEG replacement seems a long wait especially when we all know a lot of changes can happen in that time.
I don’t know anything about why PEGs might need replacing ? Cant MND or hospice team move that appointment forward ?
best wishes
Mary

[DeeH]

Lynne K

Hope you are well.

Dad (Alzheimers) had his hip replaced with a epidural and sedation
General Anaesthetic is not good for people with dementia

So if it can be used for a major hip op then it should be good for you (not medical advice)

He was up and discharged and down at the pub, 3 days from admission.

72 hours, nurses called him the fastest hip in the West of Scotland.

This was 10 years ago so not a new procedure

Since then lots of people living with dementia, have requested this instean of GA.

Good luck and stick to your wishes

Cheers

Donna


Carer for Husband, diagnosed MND (prob Fail Arm Syndrome) in July 2020

[matthew55]

My usual trick is to forget to close the valve after emptying. 😄😆😍💗xx

[Ellie]

I have had few accidents.

Accidents come in all forms 😍😍

My shower chair was obviously put over the loo all wonky this this morning and, out of the corner of my eye, I noticed a pool forming on the floor - that'll teach them to take 5 seconds to check the chair 😏

[matthew55]

Yes it is and I switch to an overnight bag. Important note get the ones you can empty and keep using not the one time use ones. I have various belts and bags but as I don't go out I keep it next to me to stop it falling off. I have had few accidents. 😆🤗😄🤣xx

[Ellie]

Isn't yours a leg bag Matthew? xx

[matthew55]

I think a leg bag is better for a woman as a dress or skirt would hide it perfectly. Maybe I should get a kilt! 🤗😆😘😍xx

[Sarahw]

My consultant mentioned this to me 2 weeks ago. I was uncertain but i would like to hear how it made a difference to people who have one. Is the bag unobtrusive when you go out? Perhaps i should start the process after hearing about waiting time.

[denise]

Looks like there's a lot of long waits for procedures. Stephen quoted 30 weeks for peg replacement.

good luck Lynne. Xx

[matthew55]

Best of everything. I look forward to having another catheter user on here 💗🤗😘😍xx

[Lynne K]

Thanks Ellie and Linda. I certainly will keep you all posted. Love Lynne x

[LindaB]

Lynne K I think you're a force to be reckoned with✊...good to know you're making progress. Thanks for the update 😘

[Ellie]

Well done for following through on the suprapubic catheter Lynne.

Shows how good it was for you to start the process now, given the delay in having the procedure done.

Keep us updated on the anaesthetic decision.

Love Ellie xx