Announcement

Collapse
No announcement yet.

Burning ankles and NIV

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Burning ankles and NIV

    Recovering after my fall although ankle and foot look like they have gone three rounds with a boxer ! I have had a return of the burning feeling in both ankles/feet not sure if anyone else has had this ? Awaiting Orthotics to contact me. Home Ventilation Nurse coming out as they have suggested this at night time. All part of the journey l suppose.

    #2
    Hi Derbyram21 haven't had burning in ankles but I can imagine that must be difficult....hopefully someone else on here can shed some light on possibilities.
    I've recently started with NIV...a work in progress....it's good they're coming out to you I had to go to the Neuro hosp.
    Take care πŸ‘
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

    Comment


      #3
      Did you have an X-ray or scan of the ankle Derbyram21 ? You could have nerve or ligament damage/trauma. It's obvs not ideal if your ankle is swollen for the orthotic measurement/assessment.

      Hope your appointment with the vent nurse goes well. xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

      Comment


        #4
        LindaB
        Glad you are progressing with the NIV.The respiratory nurse is coming to see me tomorrow and is aware I tried and tried with NIV but couldn’t tolerate it.
        Many people on this forum have got used to it so hope all goes well for you.
        Best wishes
        Mary

        Comment


          #5
          Hi Ellie
          They did X ray it and to be honest did say it would take a while to settle , maybe I am too keen, it's a miracle it didn't break . Still working out how l came to fall all pointing at leg/ankle weakness. Wife has a lot of questions for home Ventilation Team as it was a bit confusing fro our Hospital visit and tests to them saying they were coming to the house. Thanks for the replies it's all new still but then all of our journeys will I think be unique. It doesn't help that l have COPD as well. Yes l used to smoke work in dust etc.

          Comment


            #6
            Originally posted by Mary C View Post
            LindaB
            Glad you are progressing with the NIV.The respiratory nurse is coming to see me tomorrow and is aware I tried and tried with NIV but couldn’t tolerate it.
            Many people on this forum have got used to it so hope all goes well for you.
            Best wishes
            Mary
            You too Mary. I can't say it's been straight forward and I'm still getting use to the NIV. To be honest Ellie suggested rather than try straight away to sleep 4 hrs+ using NIV....maybe read...watch TV. It was sound advice ....and I've built up to sleeping. Some nights seem better than others. Not sure it's always 4 hours but I'm just doing what I can.
            I'm on low settings which will be tweaked at the next visit. Good luck with your resp nurseπŸ‘πŸ˜˜
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

            Comment


              #7
              Relax symptoms manifest whether we worry about them or not. Stay Strong 🐏🐏🐏🐏
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

              Comment


                #8
                Originally posted by Mary C View Post
                LindaB
                Glad you are progressing with the NIV.The respiratory nurse is coming to see me tomorrow and is aware I tried and tried with NIV but couldn’t tolerate it.
                Many people on this forum have got used to it so hope all goes well for you.
                Best wishes
                Mary
                I hope it went well Mary C 😘
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

                Comment


                  #9
                  Derbyram21

                  Regarding your ankle

                  This is not medical advice

                  But if you have trauma in the soft tissue is can take weeks to calm down.

                  I twisted my ankle a few years black, felt something ping, foot swollen and black and blue etc Also not broken

                  Took a few weeks to sort

                  So Rest on a cushion and chill, if swollen ice to reduce swelling.

                  Pain can feel like burning, itching or throbbing, everyone is different.


                  Take care

                  Comment

                  Working...
                  X