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Aint life grand?

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    Aint life grand?

    I'm now getting small, hard, patches of dried skin on various parts of my body. They scratch off, leaving no mark, causing no pain but scattering tiny white bits. My life was very boring before MND! πŸ˜‰πŸ˜€πŸ˜πŸ€—xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Hi matthew55

    Hubs has dry skin (since diagnosis), using Oilatum Shower Gel in the last week.

    The snow blizzard of dry skin on the sheets has reduced.

    Will speak to MND nurse about something on prescription as it is expensive but appears to work a bit.

    Got it at the chemist.

    Life is never boring with MND (we both think what next)

    The itchy running nose is bane of hubs life.

    Have a lovely day

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      #3
      Sounds like my mums cirrhosis but they were dark dry patches. Lynne x
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.

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        #4
        MND is never dull it's true. πŸ˜€πŸ€—πŸ˜πŸ˜˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          Spooky side note. As I post is Body Talk is playing on the radio. Truth. πŸ˜πŸ€—πŸ˜πŸ˜˜xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            Get your ladies to apply a good emolient cream or E45 every day after your bed bath then, once your skin improves, 3-4x per week with a decent moisturiser should keep it at bay.

            As Donna says, watch what body wash is used and it's important to rinse soap off skin - may be difficult in bed??

            xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              #7
              Sounds like fun thanks πŸ˜‰πŸ˜πŸ˜˜πŸ˜xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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