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    Sleeping

    Hello

    I have been diagnosed with probable MND.

    In the context of major issues this may seem trivial but I find it very difficult to sleep at night. I sleep on my side and my neck and shoulder ache and are very uncomfortable. We tried various Pillow combinations without success.



    Any ideas or solutions

    Thanks

    Steve

    #2
    Originally posted by sunset709 View Post
    In the context of major issues this may seem trivial but I find it very difficult to sleep at night.
    On the contrary Steve, good quality sleep is very important to us all!

    I always say to start with your mattress - have you an OT or nurse who can assess you? xx

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      There are special pillows out there as well. I'm getting a v shaped absorbing one custom made. I also use zopliclone sleeping pills to knock me out. Stay Strong. πŸ‘πŸ˜πŸ˜€πŸ€—xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        Thanks for the comments

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          #5
          Good luck for a sleep solution Steve. Lynne x
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

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            #6
            hi steve. i use a v pillow. i was a side sleeper but i was advised try sleep slightly propped up. so i purchased an adjustable bed second hand and got a new mattress. i also got a fab air mattress topper via my OT this helps me greatly. i do take a muscle relaxant at bedtime which helps. like others i will say do a bit of research and try everything as sleep is very much needed.

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              #7
              Thanks for the tips

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