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    Holiday time again

    We go to Robin Hoods Bay for 10 days today. Well, we’re staying a short drive away great the Bay, off the Whitby road in an adapted mobile home. We haven’t stayed here previously so I’m hoping they it’s adequate. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

    #2
    Good for you Lynne - hope you and Steve have a relaxing time.

    Enjoy! xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Have a great time Lynne x
      Janette x

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        #4
        Lynne K enjoy your holiday👍😘
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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          #5
          Thanks Linda, Ellie and Nettie xx
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

          Comment


            #6
            Hope you have a lovely, lovely time Lynne. I love that part of the world x 😘

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              #7
              Thanks Deb x
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.

              Comment


                #8
                I wouldn’t recommend this mobile home. It’s too small. It has a wet room and they put a shower wheelchair in there. But with that in I can’t fit my big walker in so have to swing from the grab rail by the sink to get to the loo (there’s a substantial one each side of the sink and the same type on the opposite side of the room supposedly for shower use but it’s in the wrong place). If I’d have known I’d have brought my small light weight one. They have 3 adapted cottages too and we’re going to book one for next Easter when all of our friends will be back by up here as we do every Easter. Lynne x
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                I'm staying positive and taking each day as it comes.

                Comment


                  #9
                  Oh, sorry to hear that Lynne.

                  Will you able to make the most of it and get by for the next 10 days? Don't suppose there's a vacant cottage? xx
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                    #10
                    It struck me the other day that there's no point in an all inclusive holiday for me anymore.☹️
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                      #11
                      I’ll manage. I decided that the light weight wheelchair is narrower than my big walker so asked Steve to push me into that loo in that. He has to lift it to get it parallel to the wet ring (sliding door) doorway to push me in. Safer for me but a strain for Steve’s back. But easier on his back that having to help me up from the floor if I fell. He spoke with the owner about a cottage for next Easter and she’s going’s to work out a deal as we’ll only be using the ground floor xx
                      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                      I'm staying positive and taking each day as it comes.

                      Comment


                        #12
                        Hope you manage to have a good week Lynne even though you've got to compromise xx😘🤗

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                          #13
                          Thanks Deb x
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                          I'm staying positive and taking each day as it comes.

                          Comment


                            #14
                            Hope you're enjoying it despite difficulties, Lynne. I love it up there. Did the coast to coast walk ending up there quite a few years ago. Will probably go to Filey as part of the 4 weeks I am banished out of my bungalow whilst adaptations done in October x
                            Diagnosed July 2020, ALS bulbar onset.

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                              #15
                              Heather thanks. My husband has been to Robin Hoods Bay every Easter with friends since he was 17 (now 71). I joined them every year since 2002. There’s about 65/70 of friends, family (wives, ex-wives, children, grandchildren, friends of various regulars). We all usually have cottages in RHB. But two years lockdowns we all couldn’t go so the older ones of us met up as soon as regulations allowed - at the weekend. We all had spag bol (and masses of garlic bread) last night at the home of one of our friends who moved to the Bay a few years ago. A jolly good night was had by all and plenty of wine drank.

                              Sadly we won’t ever be able to stay in one of the old cottages off the hill in RHB. But we’ve been often enough. Now we’re having to stay a short drive away from the Bay in an adapted place. But we’ll still get to see all of our friends by hook or by crook.

                              I’ve seen many coast to coasters dipping theirs feet in the sea at RHB. I hope that you received your free pint from The Bay, a tradition.

                              I hope that you enjoy your four weeks in Filey and that your adaptions go as planned. Love Lynne x
                              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                              I'm staying positive and taking each day as it comes.

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