Just had a bed bath from a small woman who I hadn't met before. I now know how a joint of meat on a butchers block feels. Sandpaper is smoother. I think I'll stay smelly! ππ€ππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020. -
I was too busy with dealing with the pain to notice! ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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WOW that's not good
zero score on YELP then
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Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Care just ain't what it used to be. ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Did you let her know afterward? If you don't give feedback, carers don't know they did something wrong, unacceptable, not how you like.
If you did let her know, you have a starting point for next time. ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Ever tried talking to a tornado? She was in and out so fast I couldn't write fast enough. ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Yup, I have those type too - they still need to get your feedback before running out the door. πOriginally posted by matthew55 View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Don't worry am good at remembering faces. I'll corner her next time. ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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