Open letter

[LindaB]

https://patientsunited2endmnd.org/current-signatories/

This open letter shows the wide age range of those diagnosed with MND. Tragically long.

[matthew55]

Thanks for sharing it helps to demonstrate we are truly not alone. 👩👩👦👦👩👩👧👦👨👩👧👧👨👩👦👦xx

[John D]

I’m in there. Anybody else? Think it’s being handed in to 10 Downing Street tomorrow by Doddie Weir.

[matthew55]

Why give it to a bunch of over privileged tossers who consider the great British public as cattle?

[LindaB]

I'm in there...
I think the more it's pushed into the political arena the better. We all know it's about £££ & votes. However MND clearly effects people of all ages....who could still be working. So additional investment in finding a treatment that works will eventually be financially beneficial to the state. It's all about ££££s
✊

[Gordan1111]

Thanks for sharing that Linda. I've asked if can get involved any way x

[Doug Carpenter]

Bless you for posting the link to the open letter, Linda. I've added my name just in time.

i agree with you - the age range is shockingly wide.

Doug

[LindaB]

Doug Carpenter it is shocking isn't it...and the more the general public are made aware the better. Personally I was fairly ignorant until diagnosis. However if more funds are needed then people need to know....it's more common than they think....sadly.

[LindaB]

https://patientsunited2endmnd.org/

I think you can still sign

[Shaun]

Still open to sign , just checked it

[matthew55]

Just added my monica 👍😁😚🤗xx

[Gordan1111]

I didn't see any place where you could sign Linda. But l agree it is about dosh and votes. Perhaps we should act more concertedly. And make intentions known. And involve our friends and friends of friends. Votes matter to them x

[Deb]

I'm in there too ! It makes it seem more personal that we can add a few details about ourselves but reading it is heartbreaking! Rob Burrow, Doddie Weir and others are handing it in at Downing Street tomorrow I think. Hopefully there will be publicity to raise awareness x❤
Thank you for sharing this LindaB xx

[LindaB]

Gordan1111 I think it's still open if you follow the link.
You're right most disability rights groups are strong and a force to be reckoned with. Our voices need to be heard ✊👍 (ironic as our physical voices become lost to MND)😞

[SallyAnnB]

Signed.