Yesterday two delightful district nurses changed my catheter. I now have a snazzy orange tube that has a really cool gripping action. ππ€‘ππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
How often does it need to be done? I'm sure it's a quick enough job and one you quickly get used to, like me and my feeding button changes.
I thought you said your carers did the changes but, given your recent sandpaper bedbath experience, I'm glad kindly nurses do it π¬π¬ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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The carers only wash me. DN's do catheter and change every nine weeks. Takes a few minutes unless I'm lying down then there's a lot of blood involved! ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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In total I have had a tube fed in and a balloon inflated five times. Four of them completely painless. Having it has changed my life for the better as before I was getting up to pee every hour of the night. Three cheers for the catheter! Hip Hip......πππ€©πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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