The eyes don't have it

[matthew55]

When I wake up, yes I do sleep a little, I have to manually open my eyes. After that they work normally. Anyone else get this? 🤔🧐😁😍xx

[Heather R]

Not me x

[nunhead_man]

Hi there,

I am not really at that stage yet – Just the occasional fasciculations around my eyes

[Ellie]

Yep, me - lying flat, opening my eyelids is impossible; with bed head half raised, I can't open eyelids if it's bright and, if it's dark, it's hit and miss; sitting upright, bingo, eyelid muscles work; if my head is tilted backwards, not a chance...

As my arms are paralysed, there's nothing I can do until someone comes and sits me up 😍😍

[matthew55]

If you go down to the woods today you're in for a big suprise, because today's the day the MND livers have their picnic! 😅😁🤗😍xx

[Doug Carpenter]

I didn't realise.....

In the light of that, Ellie, I"m even more in awe of your Eyegaze skills.

Hugs

Doug xx

[Ellie]

I"m even more in awe of your Eyegaze skills.

No need to be 😏 I'm always upright in front of my PC, with eyelids working almost normally!

My eyes themselves do sometimes 'lock' in a rather unattractive unblinking stare, which can last a minute or so before normality resumes 🙄😍😍😘

[matthew55]

Every statue I have seen of Aphrodite she has an unblinking stare and no one calls her unattractive! 😉😀😘😍xx

[Deb]

Yep, me - lying flat, opening my eyelids is impossible; with bed head half raised, I can't open eyelids if it's bright and, if it's dark, it's hit and miss; sitting upright, bingo, eyelid muscles work; if my head is tilted backwards, not a chance...

As my arms are paralysed, there's nothing I can do until someone comes and sits me up 😍😍

Does it not make you feel panicky sometimes Ellie ?

I sometimes feel panic stricken on my shower chair because I can't move it and have no phone but I can speak so can't really compare. I am as ever in awe of you xx😘🤗

[matthew55]

I can't speak for Ellie but my attitude is 'It is what it is' and 'the good lord helps those who help themselves.'

[Ellie]

Does it not make you feel panicky sometimes Ellie ?

Honestly, it's not a panicky type of situation - I know what's happening and why, so panicking doesn't cross my mind.

I'm so laid back now about my lack of abilities, I'm horizontal (with eyelids closed 😍😍😍)

But, if my PC were to be unresponsive, that's when you'd see me freaking out big time 😲 😘😘

[aussiegirl]

Yep, me - lying flat, opening my eyelids is impossible; with bed head half raised, I can't open eyelids if it's bright and, if it's dark, it's hit and miss; sitting upright, bingo, eyelid muscles work; if my head is tilted backwards, not a chance...

As my arms are paralysed, there's nothing I can do until someone comes and sits me up 😍😍

This scares me more than I can say................

[matthew55]

Well not everyone chooses to stick around for the end of the game. Some of us like to leave early. 😉😁🤗😍xx

[Ellie]

This scares me more than I can say................

To me, it's just the same as not being able to move my arms in bed. Once upright, my eyelids work - pity I can't say the same about my arms 😉

[Heather R]

Ellie Do you lie flat all the night? It’s the thought of not being able to communicate. You are a great model of acceptance, such a useful thing! X