For information my district nurses do home bloods. Fabulous service.
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
βββββ@matthew55 that's good news....πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
They sell it on to vampires.
How often do you have that done Matthew?when i can think of something profound i will update this.Comment
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I've had dozens of bloods and with my new painkiller I will have regular bloods taken. Think of a number and multiple by infinity. π€ππ€πBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Stephen had blood taken to test his carbon dioxide. Was a bit scary looked drilling for oil.when i can think of something profound i will update this.Comment
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My veins are crap so my ears are better. Go figure. π€ͺππ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Wot! They take it from your lugs?! Stephen was told he had a slow pulse. Not sure what that means.when i can think of something profound i will update this.Comment
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Talking about news. Gas shortages and changes if there is a supplier problem does anyone know how vulnerable people can seek help. Not that I foresee having a situation here but who could have predicted food shortages and all the rest. We are certainly living in strange times. π€when i can think of something profound i will update this.Comment
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Yep, you get a reliable CO2 reading from earlobe capilliary blood. πβOriginally posted by denise View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Respiratory clinic tested blood from my ear lobe..πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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denise I thought energy suppliers keep records of people vulnerable?? xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Hi @heather I was just thinking along the lines of change of supplier. Looks like we are ok I just thought about others.when i can think of something profound i will update this.Comment
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