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    Purple mottled legs

    Hi ,
    does anybody else experience cold feet and legs and purple mottled legs( not attractive)?
    I do exercises and elevate legs but no improvement,
    Best wishes
    Mary

    #2
    My feet have been cold from day one, but my legs are still normal colour if a shadow on of the size they were. πŸ˜‰πŸ˜πŸ˜πŸ˜˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      #3
      Originally posted by Mary C View Post
      does anybody else experience cold feet and legs and purple mottled legs( not attractive)?
      Yes, unfortunately it's pretty common for us *but* if you're in pain or are worried about it, do ask your GP or Nurse.

      It's typically caused by lack of oxygen-rich blood and what works for me is to keep them as warm as possible and not to let them get cold in the first place - my muscles spasm if cold. A massage can be good too - always massage towards the heart and, as you say, exercise helps (your legs could be even colder!)

      Today, I'm sporting this season's musts - long thermal ski socks, toe seams cut open so they can be pulled up over the knee, but don't go lower than the ankle (like leg warmers) which do a fine job of keeping my legs warmish, the muscle is so atrophied that it'll never be normal temperature. I also have a pretty wool blend scarf over my legs.

      I get into a warm bed thanks to an electric blanket which is on a timer and comes on intermittently throughout the night, so I wake up with warm legs and try to keep them that way.

      Some people have electric lap blankets and foot warmers too and I'm a fan of hot wheat packs and hot water bottles. Of course these aren't accessories you would want to bring along if metting friends for coffee, but you could wear thick tight or leggings under trousers and nobody would mind you putting a scarf or little blanket over your legs.

      Hope you find something which works for you Mary xx

      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        Hi Ellie, yes dark tights or leggings at least cover them up.Just ordered some tunic dresses to wear tights or leggings under.At the end of the day my legs are so cold so long bed socks warm them up.
        No more bare legs for me.Not in pain but notice if I am in the wheelchair too long my legs get so so cold and feet get stiff.
        Hot water bottle sounds a good idea for night times.
        best wishes
        Mary x

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          #5
          Sorry to hear this Mary. My legs look purple and my feet swell if I've been sitting for too long.Theyre OK in the morning after I've been lying down. The physio showed Stuart how to massage them and do passive physio but they are mega sensitive to touch. Apparently he should 6ouch them more to desensitise them !

          Even in the 30c heat in Spain I need to wear warm socks with my sundress. I don't think its a trend that will catch on. 🀣

          Take Care,
          Love Debbie xπŸ˜˜πŸ€—

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            #6
            You've had very sound advice Mary.
            At all costs avoid chillblains!

            Doug

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              #7
              I've always loved a hot water bottle...even more now...it's like a warm hugπŸ€—
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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                #8
                I, too, have the frigid legs and feet Mary. I use all the things Ellie mentioned, but also you can get heated socks (run on battery) and heated pads which you can put your feet on. My electric blanket has a separate foot section so I can leave that part on for x amount of hours. Thankfully we are coming into summer, although that doesn't help much.

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                  #9
                  I have always had cold feet. Today I have been researching foot spa and it warns feet and reflexology also. I soon won't be able to use my bath so this foot spa is a must for me. Ellie I was only looking into electric blankets yday. Can yu let me know what make you use.I suffer with few night sweats so would like it on timer.
                  Diagnosed May 2021 bulbar onset als.

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                    #10
                    Mary C Unfortunately Yes. Mine is just my feet and ankles

                    Richard
                    Richard

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                      #11
                      My body temperature goes up and down like a rabbit on acid. Problems will arise when I can't take my top off! πŸ˜‰πŸ˜πŸ˜˜πŸ˜xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                      Comment


                        #12
                        Originally posted by Mary C View Post
                        Hi ,
                        does anybody else experience cold feet and legs and purple mottled legs( not attractive)?
                        I do exercises and elevate legs but no improvement,
                        Best wishes
                        Mary
                        Yes, my feet and ankles are the same. I put them up to stop fluid building up. If I peddle for an hour that keeps the fluid away fine but I haven’t used the peddling machine since before my recent 10 days holiday so I’ll have to get back to it. Mary if they pm you my email address can you send me your exercise sheet please. Thanks xx
                        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                        I'm staying positive and taking each day as it comes.

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                          #13
                          Lynne K
                          Sorry but my IT skills are limited and so can’t send you exercise sheet,Maybe another member could send you something.

                          But basically I do exercises on my bed twice daily.

                          Stretch legs out and in 20 times each leg when lying on the bed.
                          point my legs upwards to ceiling as high as I can
                          lift toes up and down..only can do on right foot.
                          Marching but have to hold a frame to do this for a few minutes
                          circles with ankles..can’t do on left ankle.

                          Arms..stretches upwards, out to the side and make circles.
                          Roll as best as I can from side to side on bed.
                          knees closed together and move them to left and right
                          move neck to left and right and circles

                          Maybe MND have exercise sheets?
                          For me it’s a case of moving to try and prevent joint stiffness and psychologically makes me feel better than sitting still all day.
                          I used to enjoy walking holidays in Madeira until MND stopped that..but have great memories and pictures.

                          I have promised myself to make the best of each day even a grey day like today.


                          Do what exercise you can Lynne.I also have an hour on bed in afternoon to read lying on my side to take pressure of my now bony bottom( I do have pressure relieving cushions, mattress etc)

                          Kind Regards
                          Mary x


                          I

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                            #14
                            I sit on eight sheepskins, two real. I'm planning two more. πŸ‘πŸ˜šπŸ˜€πŸ€—xx
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                              #15
                              Anyone know what someone should do who cannot use their legs?

                              Richard
                              Richard

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