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    Me

    As there are unfortunately so many new people on here I think I should explain that I shoot from the hip, call a fork a fork and am happy to say what others only think. I also use humour a lot. I'm often misinterpreted but I am never offended, after all life is too short isn't it! πŸ˜πŸ€£πŸ˜‚πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Matthew I have shot from the hip all my life, some like it some don't, I try to be tactful but basically have never cared.............Marmite and all that
    Husband Albert diagnosed PMA Feb 21

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      #3
      I just hope we don't create sparks is all. It's great to have you onboard but tragic too. Peace sister. πŸ€—πŸ˜πŸ€„πŸ°xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        I'm the same. Marmite 😩

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          #5
          Matthew I enjoy reading your posts and feel for you when some can be barbed. But what a boring old world it would be if we were all the same. And with the illness we have it’s understandable that we often don’t give a @%&Β£ what others think.
          Keep telling it as it is and keep us on our toes ( Stupid bl***y expression when I can’t even stand upπŸ˜‚)

          Richard
          Richard

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            #6
            Without you lot I would have set sail for faraway shores long ago. πŸ‘πŸ˜πŸ€—πŸ™xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              It's nice to have a good discussion. Share our thoughts and feelings. Stops me jumping off the balcony. It's ok I'm not going to because its raining πŸ€”

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                #8
                And then there's me... πŸ™„πŸ€£πŸ€£
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  matthew55 I'm sure there's always someone who will give you a gentle nudge if they feel you've been a little too 'direct'...πŸ€”πŸ˜‰
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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                    #10
                    Originally posted by denise View Post
                    It's nice to have a good discussion. Share our thoughts and feelings. Stops me jumping off the balcony. It's ok I'm not going to because its raining πŸ€”
                    Typical lady. Doesn’t want to get her hair wet πŸ˜‚πŸ˜‚πŸ˜‚

                    Apologies if anyone finds my sexist comment offensive

                    Richard
                    Richard

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                      #11
                      It's ok Richard I can take it. 😚Don't want to get my slippers wet either. I went out to call George and my slipper stuck to the floor. Wet slippers and 1 wet sock and wet hair. George turns up nice and dry obviously been sitting on the bench outside the flat below.

                      Suns out so far yippee

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