So we got to October 2021. It's got me thinking about dates. I first showed symptoms in Jan 2020 but my diagnosis came in May 2020. So have I survived two years in Jan 2022 or May 2022? I'm wondering because I want to PEG a Bollinger on my Bulbar Birthday. ππ€ππxx
-
Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Two years is worthy of two bottles...January & May πΎπΎππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
I agree for Linda, 2 Bollinger infusions sound good.
In November Iβm 4 years in from eventually getting a diagnosis and still just about wobbling around with my walker indoors. So maybe a celebration then π π₯€ π xxLast edited by Lynne K; 1 October 2021, 10:01.ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
-
Well if I believe the hype if I'm still here in February I will be in the half that make it past two years with Bulbar. πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
Comment