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I'm being absolutely serious for a change

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    I'm being absolutely serious for a change

    When I am on my own and unable to speak how do I call 999 or even 911 if I need to? πŸ€”xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    You should have an alarm which can automatically dial emergency services. You only have to press a button or alternatively, if it is activated by a fall, throw it on the ground.

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      #3
      Oh I had one but I've lost it. Like so many things it has just disappeared. I hope it reappears as I pay monthly for it. πŸ€—πŸ˜πŸ˜˜πŸ˜xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        There is a way of registering for 999 calls to be able to text them, which I have done but forgotten how! Hopefully someone on here will tell you x
        Diagnosed July 2020, ALS bulbar onset.

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          #5
          You text the word 'register' to 999, then follow instructions. If people can't text, some PCs have a SIM card slot or you can buy SIM readers.

          matthew55 Get in contact with the personal alarm company and get a replacement fob!! 😘😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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