can read but hands useless
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Diagnosed 2nd Jan 2020
Both arms/shoulders affected, left worse than right.
Progressive Muscular Atrophy suspected -
You're a braver man than me my friend. Good to see you though. ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
so good to read your latest threads Matt. You seem more cheerful than months back.
Diagnosed 2nd Jan 2020
Both arms/shoulders affected, left worse than right.
Progressive Muscular Atrophy suspectedComment
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Calm before the storm mate πππ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Wow mind reading I just thought hadn't heard from you in ages. πMy husband's hands are the same. Today I had to pull him up the stairs so that's a worry his legs seem a lot weaker.
Nice to see you again. Love and hugs xxxwhen i can think of something profound i will update this.Comment
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Good to hear that youβre still around and able to communicate despite useless hands xOriginally posted by Beemer View PostLast edited by Lynne K; 4 October 2021, 10:46.ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Absolutely made my day Beemer! I've got to keep Matt on his toes...
Yes, pester your OT for eye gaze.Comment
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Great to hear from you again my friend. You have been missed.
RichardRichardComment
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Yes, Beemer, good to hear from you xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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