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    still here

    can read but hands useless
    Diagnosed 2nd Jan 2020
    Both arms/shoulders affected, left worse than right.
    Progressive Muscular Atrophy suspected

    #2
    You're a braver man than me my friend. Good to see you though. πŸ˜πŸ€—πŸ˜‚πŸ™xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      #3
      so good to read your latest threads Matt. You seem more cheerful than months back.
      Diagnosed 2nd Jan 2020
      Both arms/shoulders affected, left worse than right.
      Progressive Muscular Atrophy suspected

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        #4
        Calm before the storm mate πŸ˜‰πŸ˜‚πŸ€—πŸ˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          Originally posted by Beemer View Post
          can read but hands useless
          Thanks for posting Beemer

          Stupid question: I presume somebody has sorted out a reliable way for you to type and use a PC/tablet? xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            Wow mind reading I just thought hadn't heard from you in ages. 😘My husband's hands are the same. Today I had to pull him up the stairs so that's a worry his legs seem a lot weaker.

            Nice to see you again. Love and hugs xxx

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              #7
              Originally posted by Beemer View Post
              can read but hands useless
              Good to hear that you’re still around and able to communicate despite useless hands x
              Last edited by Lynne K; 4 October 2021, 09:46.
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.

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                #8
                Lovely to hear from you Beemer

                Thank you for posting. Love and hugs πŸ€— to you xx

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                  #9
                  Beemer nice to hear from you mate

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                    #10
                    Absolutely made my day Beemer! I've got to keep Matt on his toes...

                    Yes, pester your OT for eye gaze.
                    Copyright Graham

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                      #11
                      Great to hear from you again my friend. You have been missed.

                      Richard
                      Richard

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                        #12
                        Yes, Beemer, good to hear from you x
                        Diagnosed July 2020, ALS bulbar onset.

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