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    NIV& Orthtotics

    NIV started at night dry mouth is an issue so speaking to Home Ventilation Team .
    Orthtotics had the moulds sorted they were a lovely pink much to my wife's amusement..now we can all do with a smile l think... Orthtotics lady asks what footwear l have.. wife replies he's got trainers , church shoes ? , and dogging shoesπŸ™ƒπŸ™ƒ l am not stable sometimes as it is and about fell off the bed whilst uttering the words "she means dog walking" needless to say the next appointment shall be interesting πŸ˜ƒ

    #2
    Lucky dog πŸ˜‰πŸ˜‚πŸ€—πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      #3
      Originally posted by Derbyram21 View Post
      NIV started at night dry mouth is an issue so speaking to Home Ventilation Team .
      A humidifier for the NIV machine should solve that problem, certainly was an instant cure for my Sahara mouth. The air passes over moist air before it goes through the hose, so you're not breathing in arid air - the vent team will provide it. xx

      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        A Sunday Hearty Laugh.

        That β€˜dogging’ reference reminded me of a scene from the funniest man on the planet, Peter Kay’s, in the brilliant BBC comedy, Car Share, with Sian Gibson.
        6mins long, contains adult humour and strong language.

        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          #5
          Or try xylimelts I can't recommend them highly enough. πŸ‘xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            Originally posted by Ellie View Post
            A humidifier for the NIV machine should solve that problem, certainly was an instant cure for my Sahara mouth. The air passes over moist air before it goes through the hose, so you're not breathing in arid air - the vent team will provide it. xx
            Thanks for that I am ringing them in the morning was not sure what to do πŸ˜ƒ x

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              #7
              Originally posted by Ellie View Post
              A Sunday Hearty Laugh.

              That β€˜dogging’ reference reminded me of a scene from the funniest man on the planet, Peter Kay’s, in the brilliant BBC comedy, Car Share, with Sian Gibson.
              6mins long, contains adult humour and strong language.

              That's exactly what I was thinking πŸ˜‚πŸ˜‚πŸ˜‚ x

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                #8
                Originally posted by matthew55 View Post
                Or try xylimelts I can't recommend them highly enough. πŸ‘xx
                I will ask about them as well to me it's all worth asking about we are were we are If that makes sense πŸ˜€

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                  #9
                  Oh ellie I have had a similar problem. My predicted text changed a word to doggin and I didn't realise. Had a very confused weird conversation with someone. Most embarrassing 😳

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                    #10
                    I switch between xylimelts bought through Amazon and Biotine gel. GP can prescribe Biotene but not xylimelts.
                    Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.

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                      #11
                      Before I woke dry mouthed but with them I am drooling when I wake. Only drawback is finding the small pills stuck to me, the pillowcase or bedclothes. Small price. πŸ˜πŸ€—xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        #12
                        Ellie - xx

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                          #13
                          Derbyram21
                          Hi, I had and continue to have an awful dry mouth when I lie down to sleep.I use biotene gel, and biotene mouthwash.
                          When I used the NIV with a humidifier the dryness continued but I know for some people the humidifier works well for relieving dry mouth.
                          Whenever I wake I need to swish water around my mouth to relieve the dryness.
                          Good luck
                          Mary

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