I've taken to having one litre of feed, one litre of water and three two Cal's in a litre bottle topped off with water. I gain weight and pee for England! πππ€πxx
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Nettie You could increase the rate Janette, once you're used to the feed, or maybe run the 1000mls overnight at a slower rate.
Have you got the backpack for the pump and feed? That way you can pop it on the back of your wheelchair and you're mobile, so it shouldn't really matter that it takes 3hrs. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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