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#United2EndMND - Your URGENT help needed

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    LindaB
    Forum Member

  • LindaB
    replied
    Tried downloading the template...which I did....then wouldn't allow me to open.

    Will you be posting this on social media platforms (twitter)?

    Leave a comment:

  • matthew55
    Forum Member

  • matthew55
    replied
    I do appreciate your efforts and indeed applaud them. The very best of luck my friend. 👍😁🤗🙏xx

    Leave a comment:

  • Onein300
    Forum Member

  • Onein300
    replied
    Originally posted by matthew55 View Post
    It's quite charming that you show such trust in Parliament. They consider healthy people as cattle so who knows how they consider us. Just saying. 😁🤗🙏🐧xx
    We all have MND and this is the first time in history that we have submitted a highly detailed proposal to government and we have major influence now.

    We have the 3 major charities, Doddie Weir, Rob Burrow and all the leading U.K. researchers onboard and the team has been working for over a year on the detailed proposal.

    The government even recognise the problems facing translational neurological diseases with their new Life Sciences Vision.We are leading the way here, and the U.K. is THE leader in MND research globally. U.K. scientists have discovered over 70% of the genes implicated, pioneered the most likely first biomarker and all with a fraction of the funds provided in other countries. Now is the time for investment.

    We have already got more conversations going on with the MRC and NIHR than ever before.

    If we don't talk to politicians we will never get the focus we need. We are doing that in leagues now.

    Please support.

    Lee

    Leave a comment:

  • matthew55
    Forum Member

  • matthew55
    replied
    It's quite charming that you show such trust in Parliament. They consider healthy people as cattle so who knows how they consider us. Just saying. 😁🤗🙏🐧xx

    Leave a comment:

  • Onein300
    Forum Member

  • Onein300
    started a topic #United2EndMND - Your URGENT help needed

    #United2EndMND - Your URGENT help needed

    As many of you know we have a major research funding campaign ongoing with the U.K. government. It is the biggest campaign ever, asking for £50m for a critical MND Translational Research Institute in the current spending review. The spending review is critical if ANY money is to be released.

    We visited parliament on the 21st September and met Sajid Javid, the Speaker and many other MPs.

    We have submitted a very detailed and comprehensive spending review proposal well ahead of time, back in July and we have both conversations and connections with very senior political parities and Civil servants in the DHSC, BEIS and the Office for life sciences.

    We are so close now, but we need your help one more time before the spending review.

    In 3 weeks time the review will be complete. Last one for 3 years! If you are living with/affected by #mnd in UK can please consider writing to your MP ASAP asking for them to write to Sajid Javid & Kwasi Kwarteng to support our £50m Research bid. #united2endMND.

    We have provided the template and it's very simple to email your MP.

    https://patientsunited2endmnd.org/20...greviewaction/

    thanks in advance

    Lee Millads - aka Onein300
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