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  • denise
    replied
    We've got a social worker. No idea where he came from or where hes gone 🙄

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  • LindaB
    replied
    Fingers crossed you get the support you need 😉😇

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  • matthew55
    replied
    I have asked my GP and my community neuro team. 🤔xx

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  • LindaB
    replied
    That's bonkers matthew55 you're diagnosis alone is enough to justify their involvement. You don't have to be 'close' to death....it's about supporting you to be as well as possible for as long as possible.
    ​​​​​I'm sorry you're being given the 'run around' Matthew seems like a post code lottery. 🙁

    Could you e-mail mnda for support with this?

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  • matthew55
    replied
    My local hospice has washed their hands of me. I'm not close enough to death for them. ☹️🐧😁🤗xx

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  • LindaB
    replied
    Well I've been allocated a social worker from the hospice. If you have an e-mail address for your local hospice could you make contact?
    I thinking as communication becomes difficult a social worker can act on your behalf...or an advocate. I'm sorry it's a struggle matthew55 to get these things sorted.

    PS I suppose I'm biased as I'm a social worker 😂😂

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  • matthew55
    replied
    I don't know any x

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  • LindaB
    replied
    matthew55 maybe a social worker?

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  • matthew55
    replied
    If I could ask them I would. Texts not answered and email doesn't work. 😡😁🤗😍xx

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  • LindaB
    replied
    Not necessarily matthew55 ...the care agency will have a medicines policy...you can ask to see it. If you disagree with whatever that is you're free to say no....this is my preference blah blah. You do have power.✊

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  • matthew55
    replied
    As it stands they can mould the rules to suit themselves. Facism alive and well in healthcare. 😡🐧xx

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  • Ellie
    replied
    That's what I thought LindaB , thanks. xx

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  • LindaB
    replied
    When the CQC write 'In a residential setting' they mean in a residential care home or nursing care home. Not a person's own home in the community.

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  • Ellie
    replied
    Originally posted by shelly21 View Post
    Ellie it means in a residential setting. Basically his home.
    Oh, I didn't think "Residential Services" included private domestic homes - that's a bummer. x

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  • shelly21
    replied
    Ellie it means in a residential setting. Basically his home. X

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