David Pearce is in the news today highlighting the barbaric assisted dying laws in the UK. He's living with MND. If it helps to get the message out. 👍✌️🙏🤗xx
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S!y news today
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Thanks matthew55
Boris said he'll vote against it, so little chance of it progressing... 😟
Still, MND is in the news, raising awareness, always good, whater the context. xx
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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The case study was of ‘Alex’ who had gone from running the Transalpine 255km in 2018 to being confined to a wheelchair now. “Too late to save my life but you could save others by helping to find a cure” by donating to MNDA.
Wonder if leaflet found it’s way into other publications.Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.
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