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    S!y news today

    David Pearce is in the news today highlighting the barbaric assisted dying laws in the UK. He's living with MND. If it helps to get the message out. 👍✌️🙏🤗xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

    #2
    Thanks
    matthew55
    Forum Member
    matthew55

    Boris said he'll vote against it, so little chance of it progressing... 😟

    Still, MND is in the news, raising awareness, always good, whater the context. xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      There were MND leaflets with Private Eye last week and The Saturday Times yesterday.
      Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.

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        #4
        John D
        Forum Member
        John D Any idea what the leaflet content was John? xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          Will dig it out when home tomorrow but essentially a case study and appeal for donations.
          Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.

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            #6
            Thanks John - don't go to any trouble though. xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            Comment


              #7
              The case study was of ‘Alex’ who had gone from running the Transalpine 255km in 2018 to being confined to a wheelchair now. “Too late to save my life but you could save others by helping to find a cure” by donating to MNDA.

              Wonder if leaflet found it’s way into other publications.
              Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.

              Comment


                #8
                Thanks John.
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                Comment

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