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    I'm here are you?

    Sunday is a quiet day so I thought I'd just let you know that I am here. πŸ˜πŸ€—πŸ˜œπŸ‘xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    I am at home now too Matthew.Think I might have a nap as energy gone after being out and about earlier.
    Sunday was always a day of rest in my family..remember when the shops were shut on Sundays?
    Hope you are doing ok
    Best wishes
    Mary

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      #3
      And pubs were Noon to two and seven to ten thirty. 😁xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        I seem to remember there was also a day in the week that shops closed for half a day....or did I dream thatπŸ€”
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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          #5
          Wednesday 😁xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            I'm here matthew55 . Love and hugs to you 😘😁x

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              #7
              Yes Wednesdays....crikey didn't we live a less frantic life then....πŸ€”
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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                #8
                Bring back the eighties I say! πŸ‘πŸ˜œπŸ˜πŸ€—xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  #9
                  Originally posted by matthew55 View Post
                  Bring back the eighties I say!
                  Ugh, no thanks! Rampant and unquestioned sexism, racism, child abuse and so on...



                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    #10
                    Same could be said for every decade before and after. I wasn't abused and in my schools I didn't witness any racism. My girlfriends didn't complain about being oppressed either. So why pick on the eighties?
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      #11
                      Well, it was you who said the you wanted to go back to the eighties... 😏😘😘
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

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                        #12
                        I was 10 in 1975 20 in 1985 and 30 in 1995 πŸ˜œπŸ‘πŸ˜πŸ€—xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          #13
                          So, if my Mensa membership means anything, I can work out that you were born in 1965 🀩🀩🀩😘😘
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            #14
                            Did you have any nice visitors today? xx
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

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                              #15
                              Sorry I wasn't ignoring you I'd crashed out! Ogres and imps yesterday. Hoping for a princess today. Good news however my middle brother and his wife are coming to stay a couple of nights. I ordered a brand new inflatable mattress to celebrate! πŸ˜πŸ€—πŸ˜˜πŸ˜xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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