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    #16
    shelly21
    Forum Member
    shelly21 yes it is hun 🤦🏼‍♀️ We shouldn’t have to wait as long as we have, but we’re nearly there now and can’t wait 🚿🤗
    much love Janette xx
    Janette x

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      #17
      Nettie
      Forum Member
      Nettie

      It will be worth it.

      Thomas (with MND) had no shower for 5 months, only bed baths from me (poor soul)

      Moved house (second time in 8 months)

      BUT

      Hot showers in amazing wet room

      So totally worth the stress

      Waiting for lowered front door *wheel chair accessable my arse - as we say in Scotland)
      So still house bound.

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        #18
        shelly21
        Forum Member
        shelly21 same here I’ve not had a shower for well over a year 🤦🏼‍♀️ Had a ramp fitted couple of months ago I can get out but can’t get back in!! So waiting for new front door 🤦🏼‍♀️ X
        Janette x

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          #19
          Originally posted by Nettie View Post
          Had a ramp fitted couple of months ago I can get out but can’t get back in!!
          Are you sure Phil didn't organise it that way Janette 🤣🤣

          Not long to wait for the Spa Day 🤞🤞😘

          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #20
            😂😂😂 you’re probably right Ellie 😂
            I don’t think it will be finished this week 🤦🏼‍♀️ The plasterer is off sick for a start so it’s looking unlikely but hey ho 🤗 love Janette x
            Janette x

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              #21
              Oh no, Janette, what bad luck. Hope your spa day is not long off! Xx
              Diagnosed July 2020, ALS bulbar onset.

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                #22
                Heather R
                Forum Member
                Heather R i know 🤦🏼‍♀️ But I’m the queen 👸 of waiting 😂
                patience is a virtue love Janette x
                Janette x

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                  #23
                  Originally posted by Nettie View Post
                  shelly21
                  Forum Member
                  shelly21 same here I’ve not had a shower for well over a year 🤦🏼‍♀️ Had a ramp fitted couple of months ago I can get out but can’t get back in!! So waiting for new front door 🤦🏼‍♀️ X


                  We had the same issue in the old house. Only discovered I couldn't push Thomas up the temp ramp, after we went out.

                  And couldn't get back in, half way up, roll back down.

                  A neighbour seen me struggling and came out to help.

                  Thank goodness

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                    #24
                    Nettie
                    Forum Member
                    Nettie I bow to your patient queenship x
                    Diagnosed July 2020, ALS bulbar onset.

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                      #25
                      Originally posted by Nettie View Post
                      ... patience is a virtue
                      I used to be the most impatient person and being dependent upon others has taught me patience, took a while, but I have learned to be Zen about things outside of my control. 👼 🧘‍♀️

                      Now that I think of it, my Buddha Belly suits me 🤣🤣🤣
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                        #26
                        I learnt patience when I was driving professionally. Especially on the car park that is known as the M25. 😁🤗👍😍xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                          #27
                          Well it will be testing my patience they’ve just told us it will take another week 🤦🏼‍♀️
                          So I’ve been doing a bit of crafting while I still can to keep me sane 😬 Janette x
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                          Janette x

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                            #28
                            They are beautiful
                            Nettie
                            Forum Member
                            Nettie . You are so creative and talented.

                            Your spa day must seem like a distant dream to you after everything has gone so wrong. You will get there and there'll be no keeping you out of that shower.

                            Love and hugs xx😘🤗

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                              #29
                              Thanks Deb, it takes me longer now and my eyes aren’t what they used be I’ve just ordered myself a magnifier light to make it a bit easier 🤗
                              Yes will have to wait for spa day but will have to find a way to wash my hair soon 🤦🏼‍♀️😂 love Janette xx
                              Janette x

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                                #30
                                Nettie
                                Forum Member
                                Nettie I'll gloss over the extra week situation 🤐

                                The hearts are lovely Janette, great to keep busy - Christmas presents? 🤗😘
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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