shelly21 yes it is hun 🤦🏼♀️ We shouldn’t have to wait as long as we have, but we’re nearly there now and can’t wait 🚿🤗
much love Janette xx
much love Janette xx
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Janette x -
Nettie
It will be worth it.
Thomas (with MND) had no shower for 5 months, only bed baths from me (poor soul)
Moved house (second time in 8 months)
BUT
Hot showers in amazing wet room
So totally worth the stress
Waiting for lowered front door *wheel chair accessable my arse - as we say in Scotland)
So still house bound.
Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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shelly21 same here I’ve not had a shower for well over a year 🤦🏼♀️ Had a ramp fitted couple of months ago I can get out but can’t get back in!! So waiting for new front door 🤦🏼♀️ XJanette xComment
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Are you sure Phil didn't organise it that way Janette 🤣🤣Originally posted by Nettie View Post
Not long to wait for the Spa Day 🤞🤞😘
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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😂😂😂 you’re probably right Ellie 😂
I don’t think it will be finished this week 🤦🏼♀️ The plasterer is off sick for a start so it’s looking unlikely but hey ho 🤗 love Janette xJanette xComment
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Oh no, Janette, what bad luck. Hope your spa day is not long off! XxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Heather R i know 🤦🏼♀️ But I’m the queen 👸 of waiting 😂
patience is a virtue love Janette xJanette xComment
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Originally posted by Nettie View Post
We had the same issue in the old house. Only discovered I couldn't push Thomas up the temp ramp, after we went out.
And couldn't get back in, half way up, roll back down.
A neighbour seen me struggling and came out to help.
Thank goodness
Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Nettie I bow to your patient queenship xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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I used to be the most impatient person and being dependent upon others has taught me patience, took a while, but I have learned to be Zen about things outside of my control. 👼 🧘♀️Originally posted by Nettie View Post
Now that I think of it, my Buddha Belly suits me 🤣🤣🤣
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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I learnt patience when I was driving professionally. Especially on the car park that is known as the M25. 😁🤗👍😍xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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Well it will be testing my patience they’ve just told us it will take another week 🤦🏼♀️
So I’ve been doing a bit of crafting while I still can to keep me sane 😬 Janette xYou do not have permission to view this gallery.
This gallery has 1 photos.Janette xComment
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They are beautiful Nettie . You are so creative and talented.
Your spa day must seem like a distant dream to you after everything has gone so wrong. You will get there and there'll be no keeping you out of that shower.
Love and hugs xx😘🤗Comment
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Thanks Deb, it takes me longer now and my eyes aren’t what they used be I’ve just ordered myself a magnifier light to make it a bit easier 🤗
Yes will have to wait for spa day but will have to find a way to wash my hair soon 🤦🏼♀️😂 love Janette xxJanette xComment
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Nettie I'll gloss over the extra week situation 🤐
The hearts are lovely Janette, great to keep busy - Christmas presents? 🤗😘Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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