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    #31
    Nettie You’re a queen. Enjoy your lovely crafting xx
    Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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      #32
      Originally posted by Ellie View Post
      Nettie I'll gloss over the extra week situation 🀐

      The hearts are lovely Janette, great to keep busy - Christmas presents? πŸ€—πŸ˜˜
      Thanks Ellie they’re a bit easier than the pictures I did last Christmas, I’ll just let people pick one if they want one πŸ€— I’ve got some Christmas cards to do as well, might as well while I still can πŸ€·β€β™€οΈ Love Janette xx
      Janette x

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        #33
        Originally posted by Heather R View Post
        Nettie You’re a queen. Enjoy your lovely crafting xx
        Thank you Heather ❀️ Love Janette xx
        Janette x

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          #34
          Oh Jeanette

          I dont believe it . What a saga. When there was a suggestion of work done on my son's flat through the council. Have to say you came into my head. Couldn't help but think I'd rather cope without. Well when it is sorted I hope you have champagne to celebrate.

          Love and hugs xxxxx
          when i can think of something profound i will update this.

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            #35
            Morning Denise, if I’d known how long I’d have to wait for everything I would have been better moving but that’s not easy too πŸ€·β€β™€οΈ
            well I don’t drink now but I may partake in a glass in celebration πŸ₯‚ love Janette x
            Janette x

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              #36
              I know that's my rub Janette could move but still need to wait. I couldn't face all that. I could regret staying but then I could regret moving. At least it's my sons flat. 😳 think when your bathrooms done we should all have a champagne party in your bathroom. Fingers crossed πŸ˜˜πŸ€—
              when i can think of something profound i will update this.

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                #37
                I know I feel for you πŸ₯Ί Damned if you do Damned if you don’t πŸ€¦πŸΌβ€β™€οΈ I’m sure it will all work out in the end πŸ™πŸ»
                yeah a champagne shower party πŸ˜‚πŸ˜‚
                Janette x

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                  #38
                  Originally posted by Nettie View Post
                  yeah a champagne shower party
                  In certain circles Janette, that phrase means something very, very different πŸ˜‰πŸ˜‰πŸ˜‚πŸ˜‚πŸ˜˜

                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    #39
                    Originally posted by Ellie View Post
                    In certain circles Janette, that phrase means something very, very different πŸ˜‰πŸ˜‰πŸ˜‚πŸ˜‚πŸ˜˜
                    πŸ€¦πŸΌβ€β™€οΈ Oops πŸ˜‚πŸ˜‚πŸ˜‚
                    Janette x

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                      #40
                      I must have had a sheltered life I don't understand. Can someone private message me if it's that naughty,?
                      when i can think of something profound i will update this.

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                        #41
                        The usual phrase naughty Ellie was referring to is, I believe, 'golden shower".......
                        Diagnosed April 2017

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                          #42
                          Originally posted by Doug Carpenter View Post
                          The usual phrase naughty Ellie was referring to is, I believe, 'golden shower".......
                          Nope!! Not that.
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            #43
                            Ok now I'm completely confused. Blimey where have I been with all this going on.

                            Jeantte has gone very quiet 😳
                            when i can think of something profound i will update this.

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                              #44
                              Oh my. I've just looked up golden shower. 😯 I'm traumatised. Well I never. Theres a thing. And your telling me it's not that. Well whatever could it be? 🀭
                              when i can think of something profound i will update this.

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                                #45
                                Sorry!

                                PM then....?
                                Diagnosed April 2017

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