Today is my VP day!
Today I'm getting my custom made V pillow. I'll let you know in a few days if it helps with my neck pain. Happy Days. πππ§πxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Fingers crossed xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning! -
Hope it gives you relief Matthew - is it just for bed or for daytime when sitting atop the πππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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It's for the bed. Deals with secretions as well! πππ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Lol. Super absorbent! πππ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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It came with two covers. It's memory foam too. Β£120 apparently. ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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π²Originally posted by matthew55 View Post
I'd want it bring itself to the dry cleaners for that amount π€© Good thing you're not paying!
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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BTW, has it arrived?? xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Arrived and in place on my bed. πππ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Happy days (or nights) xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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matthew55
Who arranged the pillow and what is it called???
Thomas, neck needs more support in bed, OT just went MMMMMDonna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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matthew55 how was it??? Magic
Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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