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Today is my VP day!

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    Today is my VP day!

    Today I'm getting my custom made V pillow. I'll let you know in a few days if it helps with my neck pain. Happy Days. 😁😜🐧😍xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Fingers crossed xx
    Diagnosed July 2020, ALS bulbar onset.

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      #3
      Hope it gives you relief Matthew - is it just for bed or for daytime when sitting atop the πŸ‘πŸ˜πŸ˜˜
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        It's for the bed. Deals with secretions as well! πŸ˜‰πŸ˜πŸ€—πŸ˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          Originally posted by matthew55 View Post
          Deals with secretions as well!
          By elevating your head πŸ€”πŸ˜˜

          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            Lol. Super absorbent! πŸ˜‚πŸ˜˜πŸ€—πŸ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              I everything crossed it works for you matthew55 .πŸ˜˜πŸ€—x

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                #8
                Originally posted by matthew55 View Post
                Lol. Super absorbent!
                Erm in that case, let's hope super washable too πŸ˜‰πŸ˜˜

                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  It came with two covers. It's memory foam too. Β£120 apparently. πŸ˜πŸ€—πŸ˜˜πŸ˜xx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                  Comment


                    #10
                    Originally posted by matthew55 View Post
                    Β£120 apparently.
                    😲

                    I'd want it bring itself to the dry cleaners for that amount 🀩 Good thing you're not paying!

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      #11
                      BTW, has it arrived?? xx
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

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                        #12
                        Arrived and in place on my bed. πŸ‘πŸ˜πŸ€—πŸ˜xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          #13
                          Happy days (or nights) xx
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

                          Comment


                            #14
                            matthew55

                            Who arranged the pillow and what is it called???

                            Thomas, neck needs more support in bed, OT just went MMMMM

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                              #15
                              matthew55 how was it??? Magic

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