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Promoting MND/ASL

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    Promoting MND/ASL

    I was always taught that if you don't ask you don't get. So how about putting Ellie and me up for a New Years Honour? Services to MND/ASL livers and carers. Okay we don't have olympic medals, play tennis or own a bank. What we do is help, advise, support and love people who are in a desperate situation not of their own making. Oh and it's number three on my Bucket list! πŸ˜πŸ€—πŸ˜πŸ‘xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    matthew55 that's a great idea for you and @Ellie

    You both deserve it.

    Mum got a MBE in 2015 for services for people with dementia, as someone with dementia. Went to Buckingham palace and got it from Prince Charles. I think you need someone in authority to nominate you, as a respectable person. (mmmmmm)

    We will need to investigate further, someone got it for services to Textiles. So it is possible

    As you say, get MND more visible.

    Hugs
    Donna

    What's number one and two on the bucket list??? Curious people want to know

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      #3
      No1 Sleep with Sandra Bullock, No 2 Walk on the Great Wall πŸ‘πŸ€—πŸ˜πŸ˜xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        matthew55 haha you share the same taste in women as my other half. Loves Sandra.

        you pair do certainly help. Keep up the good works chap's
        Diagnosed May 2021 bulbar onset als.

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          #5
          Hmmmm, I checked the date and it's not the 1st of April 😏

          Originally posted by matthew55 View Post
          So how about putting Ellie and me up for a New Years Honour?
          Frankly, for me, I couldn't think of anything I'd run away from faster than to be publicly thanked for doing nothing but enjoying myself 😟😳

          But if you want to go for an honour, I'd back you all the way πŸ‘πŸ‘πŸ‘πŸ˜˜
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            You're too modest girl. βœŒοΈπŸ˜πŸ€—πŸ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              Think you all deserve a medal.

              πŸ₯°πŸ€—πŸ˜˜
              when i can think of something profound i will update this.

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                #8
                Originally posted by denise View Post
                Think you all deserve a medal.
                Include yourself and all caring family members on the medal list Denise hun πŸ€—πŸ€—πŸ€—πŸ˜˜

                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  So Matthew55 and Ellie are highly thought of, no surprise here.
                  Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

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                    #10
                    Thanks ellie. πŸ₯°πŸ˜˜πŸ€—
                    when i can think of something profound i will update this.

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                      #11
                      matthew55

                      Good choices

                      Mine involve a lie in past 8am.

                      When I fell in love with Thomas, he failed to mention he is up with the larks.

                      We got to walk the Machu Pichu Trail in the early days of romance and always planned on the West Highland Way (which I did with my mum, 30 years ago)

                      Hope you get your pillow to your liking for tonight

                      Cheers

                      Donna

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