I was always taught that if you don't ask you don't get. So how about putting Ellie and me up for a New Years Honour? Services to MND/ASL livers and carers. Okay we don't have olympic medals, play tennis or own a bank. What we do is help, advise, support and love people who are in a desperate situation not of their own making. Oh and it's number three on my Bucket list! ππ€ππxx
Promoting MND/ASL
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matthew55 that's a great idea for you and @Ellie
You both deserve it.
Mum got a MBE in 2015 for services for people with dementia, as someone with dementia. Went to Buckingham palace and got it from Prince Charles. I think you need someone in authority to nominate you, as a respectable person. (mmmmmm)
We will need to investigate further, someone got it for services to Textiles. So it is possible
As you say, get MND more visible.
Hugs
Donna
What's number one and two on the bucket list??? Curious people want to knowDonna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.
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Hmmmm, I checked the date and it's not the 1st of April π
Originally posted by matthew55 View PostSo how about putting Ellie and me up for a New Years Honour?
But if you want to go for an honour, I'd back you all the way ππππ
βDiagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Originally posted by denise View PostThink you all deserve a medal.
βDiagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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matthew55
Good choices
Mine involve a lie in past 8am.
When I fell in love with Thomas, he failed to mention he is up with the larks.
We got to walk the Machu Pichu Trail in the early days of romance and always planned on the West Highland Way (which I did with my mum, 30 years ago)
Hope you get your pillow to your liking for tonight
Cheers
DonnaDonna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.
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