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    Home sight test

    Later today should be interesting. I'm having an in-home sight test. I can't speak. Cogitate that over your cornflakes. πŸ˜‰πŸ€—πŸ€£πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Can you scribble the letter down on paper without looking? Or are your hands too bad? I am interested as I really need a test too! Xx
    Diagnosed July 2020, ALS bulbar onset.

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      #3
      I'll let you know how I get on.
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        Matthew I don't think its too late for you to get a voice app. You can use someone else's voice. Ive used my daughter's and when people can't understand me I can type it into the ipad. Typing is slow because my left hand is not working properly but I can manage and at the moment my right hand is fine. The MNDA organised the recording. I had to pay for the app -Β£140, and an ipad Β£500 with a keyboard. Just a thought.

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          #5
          My fingers get tired quickly typing and I find people don't always understand the message the first time. Boogie board and thick pens for now.
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            I just typed out the letters during my eye test. xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              #7
              We had specsavers around couple of weeks ago. It was great. He was brilliant with Stephen.
              I'm hopeless. When they say which looks better this lenses or that one? I panic! Which one? I imagine getting an electric shock because I've given the wrong answer. πŸ™„
              when i can think of something profound i will update this.

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                #8
                No one turned up ☹️
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  #9
                  matthew55 Ugh, what poor service - no text or contact from them? πŸ€—πŸ€—πŸ˜˜
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    #10
                    Nope, nothing. β˜ΉοΈπŸ˜‰πŸ˜πŸ€—xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      #11
                      Sorry mate... xxxx
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

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                        #12
                        Who did you book with Matthew? Name and shame.
                        when i can think of something profound i will update this.

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                          #13
                          Spec savers
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            #14
                            Oh my. Got thumbs up from me and sue from wakey.
                            when i can think of something profound i will update this.

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                              #15
                              Absolutely! fab service from them
                              Husband Albert diagnosed PMA Feb 21

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