Later today should be interesting. I'm having an in-home sight test. I can't speak. Cogitate that over your cornflakes. ππ€π€£πxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Can you scribble the letter down on paper without looking? Or are your hands too bad? I am interested as I really need a test too! XxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning! -
I'll let you know how I get on.Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Matthew I don't think its too late for you to get a voice app. You can use someone else's voice. Ive used my daughter's and when people can't understand me I can type it into the ipad. Typing is slow because my left hand is not working properly but I can manage and at the moment my right hand is fine. The MNDA organised the recording. I had to pay for the app -Β£140, and an ipad Β£500 with a keyboard. Just a thought.
Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comesComment
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My fingers get tired quickly typing and I find people don't always understand the message the first time. Boogie board and thick pens for now.Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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I just typed out the letters during my eye test. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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We had specsavers around couple of weeks ago. It was great. He was brilliant with Stephen.
I'm hopeless. When they say which looks better this lenses or that one? I panic! Which one? I imagine getting an electric shock because I've given the wrong answer. πwhen i can think of something profound i will update this.Comment
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No one turned up βΉοΈBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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matthew55 Ugh, what poor service - no text or contact from them? π€π€πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Nope, nothing. βΉοΈπππ€xx
Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Sorry mate... xxxxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Who did you book with Matthew? Name and shame.when i can think of something profound i will update this.Comment
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Spec saversBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Oh my. Got thumbs up from me and sue from wakey.when i can think of something profound i will update this.Comment
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Absolutely! fab service from themHusband Albert diagnosed PMA Feb 21Comment
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