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    Saliva

    Been taking pineapple juice but I must say I am full of a cold and having bad saliva issues at the moment. Sat here with saliva dribbling down my chin (not a pretty sight but as theres no-one home I have just given it full rein to flow like Niagara Falls!! ) Went for a curry with friends last week and I felt really awkward and uncomfortable due to this and had to keeping dabbing at my mouth hoping no-one had noticed, so embarressing and humiliating when in public or with family.

    Was there a medication you can ask for at the GP's to stop this and what are the side effects please?

    I've been reluctant to address this issue as I keep getting aches and pains and coughs which stretch the limit of my endurance but then go away, until the next thing strikes to challenge me so hoping it would go away.

    #2
    Glycopyrronium Bromide, atropine drops and man size tissues.
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #3
      Matthew do you just ask the GP for this on script or just say you want something for excess saliva ?

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        #4
        Either mate
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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          #5
          Originally posted by Worsleybird View Post
          Was there a medication you can ask for at the GP's to stop this and what are the side effects please?
          There are several meds, each have side effects and interactions with other meds, so your GP should know which one is the best to try first.

          Pineapple juice thins all secretions, which may be making the saliva worse but, given that you have a cold, the saliva issue might be the lesser of two evils in the daily balancing act of managing secretions...

          Keep well hydrated too. xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Hyoscine patches (repurposed travel sickness med!) are worth a try.
            Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.

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              #7
              Worsleybird I’ve been having similar problems in the last few months, getting worse by the day. I read somewhere that MND doesn’t increase the volume of saliva. That’s plainly nonsense in my case and it impacts my use of NIV because the mask fills up with saliva drooling through my lips. Glycopyrronium upset my gut quite badly, Amitriptyline has had zero effect, Hyoscine patches have resulted in constipation and only very marginal improvement. Next step for me is Botox injections, I’ll post an update when that happens 😬
              Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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                #8
                Originally posted by PeterPan View Post
                I read somewhere that MND doesn’t increase the volume of saliva. That’s plainly nonsense
                The amount of saliva produced doesn't increase with MND, rather it's our inability to effectively and efficiently swallow it that causes the problem - our throat muscles weaken, our lip seal slackens and muscle tone in facial muscles change too. xx

                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                  #9
                  I totally recommend Glycopyrronium Bromide. That is a wonder drug for us adult dribblers. 👍😁🤗✌️xx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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