Still unsure whether to have this done or not. Currently waiting for an appointment. I think part of me thinks this is a way if not having the tube for a quick exit or to avoid my family and myself suffering as the disease progresses, also worried about hygiene pneumonia not having visitors after the op due to covid plus communicating with hospital staff due to my reduced speech whilst laid up in bed.
I dont have any swallowing issues and can eat normally but my speech is definitely getting worse. Is it odds on that once your speech goes, your swallowing goes, is their a trajectory in how bulbar MND progresses - i.e. speech throat and then onwards to limbs?
Head versus heart here.
Any comments welcome
I dont have any swallowing issues and can eat normally but my speech is definitely getting worse. Is it odds on that once your speech goes, your swallowing goes, is their a trajectory in how bulbar MND progresses - i.e. speech throat and then onwards to limbs?
Head versus heart here.
Any comments welcome

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