I have never claimed any sort of benefit all my life and now they have started paying attendance allowance into my bank account,
why do I feel so guilty about it?
why do I feel so guilty about it?
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It's all funny -
No idea.Attendance allowance is a non means tested benefit .No doubt you will need one fit to make life easier for yourself to remain at home.
Best wishes
Mary -
Typo...meant to say need it
maryComment
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Take what's yours. You will need it.. sorry but getting help with equipment can resort to buying what you need.
Always felt the same but really dont feel that way. Xxxwhen i can think of something profound i will update this.Comment
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It's quite common for people to feel 'guilty' about receiving benefits their entitled to. That's the point....you're entitled to it to support you to pay for additional support. Use it and I hope it helps in some small way. ππOriginally posted by keno View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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I spent Β£91 on elephant's feet for sofa and bed the other day and was going to buy an electric recliner but my support nurse asked me to wait while she referred me to the MNDA.Originally posted by denise View Post
My stairs are very steep so need something to sleep in if necessary. This is an old-style mid terrace.
Two radiators have become blocked in the bathroom and kitchen so arranging a plumber to clean the system and replace three radiators. I was planning on doing that job myself until MND came along.
It's all funnyComment
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Technics for getting from a prone position to sitting up on edge of the bed would be handyIt's all funnyComment
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Your OT would have got you elephants feet or a chair. You would get to wait for somethings. I got a 2nd hand chairlift put in. Ask no harm in asking.when i can think of something profound i will update this.Comment
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I needed the feet urgently due to being stuck on the sofa for half an hour with a full bladderOriginally posted by denise View Post
It's all funnyComment
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Oh no you poor soul. How horrible. My husband got stuck in my sons car and unfortunately couldn't wait. πwhen i can think of something profound i will update this.Comment
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The thing about benefits is that if you worked you were paying for them. So your only getting back your own money.Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Exactly Matthew. Well said
when i can think of something profound i will update this.Comment
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Yes I agree but it's hard to change an opinion you have held for all your lifeOriginally posted by matthew55 View PostIt's all funnyComment
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Ken, your OT should assess you and supply aids to make daily living easier and safer for you.Originally posted by keno View Post
Sounds like grab rails and a profiling bed would help you, though the bed might come from nursing, not OT, the OT can make referrals. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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