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The Thumb Print

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    The Thumb Print

    Can I start by saying I am not dissing anyone but I feel that the Thumb Print is very biased towards fund raising and I think the real story is the amazing people who have defied the odds and have found a way to live with this awful disease. A note on funds would be why doesn't our elected government give us more money or are we less important than buses or starving people in far away lands? Just saying. πŸ˜πŸ€—πŸ˜˜πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    I'm with you Matthew xxx
    when i can think of something profound i will update this.

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      #3
      The only way I can cope with this awful disease is to remain positive about the things I can do, and realistic about the things I can’t do anymore. But I agree Matthew, Thumb Print is a bit too β€˜happy and smiley’ for me. I’m definitely not minimising the fundraising efforts - my younger son has raised over Β£8,000 of his Β£10,000 target - running 1,000 kms this year for the MNDA. (A brilliant achievement of which we are very proud!).

      For me the magazine would be better if it was a bit more realistic, sharper and campaigning in tone, as well as being celebratory. Maybe it could point out some of the huge everyday challenges, iniquities, postcode lotteries, discrimination and unfairness that people face every day, and how some people have overcome these problems against all the odds.

      Thanks for the post, Matthew.
      Last edited by PeterPan; 31 October 2021, 19:42.
      Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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        #4
        I just hope the right people read it. Change can be good as well as bad. πŸ˜‰πŸ˜πŸ˜ŠπŸ‘xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          Totally agree Matthew! πŸ‘

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