Announcement

Collapse
No announcement yet.

Muscle Fasciculation

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Muscle Fasciculation

    Hello All
    I am looking for some guidance regarding muscle fasciculations. My brother, who was diagnosed recently, has had these for about 18 months and was the first sign of anything being wrong. They started in the shoulders and arms and travelled down the body. He hates having them as he says at time they are painful and he they also worry and upset him. His doctor is at a loss to know what to suggest (apologies I think he tried one medication but the name escapes me). He has been having physio which he says helps a bit.

    Has anyone got any tips for medication/supplements/oils etc that he can try that has been successful in easing or stopping them?

    Man thanks

    Littlesister

    #2
    Baclofen is what I use 👍😁🤗🤣xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

    Comment


      #3
      Thank you matthew55 I'll pass that info on. Much appreciated.

      Comment


        #4
        Littlesister Is your brother taking Riluzole?

        I'm going to disagree somewhat about taking Baclofen to stop fasciculations (sorry mate 😘) as it doesn't act on the root cause of the fasciculations themselves and, if your bro doesn't need an antispasmodic drug like Baclofen, it could cause problems.

        Gabapentin and pregabalin are often used to treat them and some people find CBD oil gives relief. xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        Comment


          #5
          Ellie Yes he is taking Riluzole.
          I read up about Baclofen and the side effects,
          I will pass on your suggestions too. Fabulous thank you. Much appreciated.

          Comment


            #6
            Littlesister Plus, I forgot to say, keeping well hydrated is important.

            He could try magnesium supplements and make sure he’s getting enough B and D vitamins. If he plans on taking any supplements, he should do research on doses, side effects, interactions and vendors. xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            Comment


              #7
              I wasn't saying I would stop facilitations, it's just I have constant ones and they don't pain me.
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

              Comment


                #8
                matthew55 good that you don't have pain with them, thank you.

                Comment


                  #9
                  Ellie noted re the magnesium and vitamins, thank you.

                  Comment


                    #10
                    I was told that drinking Tonic Water can help with painful cramps and if you don’t like it neat you can dilute it with Gin 😂

                    Richard
                    Richard

                    Comment


                      #11
                      Originally posted by richard View Post
                      I was told that drinking Tonic Water can help with painful cramps and if you don’t like it neat you can dilute it with Gin 😂

                      Richard
                      Yes it does
                      Since I was prescribed quinine the night cramps went away and the muscle twitches reduced a lot too.
                      It's all funny

                      Comment


                        #12
                        Originally posted by richard View Post
                        I was told that drinking Tonic Water can help with painful cramps
                        Nothwithstanding the added gin 😉 you'd need to drink about 3 litres of it to get the same amount of quinine as in one prescription tablet - might have fun in the process though 😍😘

                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        Comment


                          #13
                          Originally posted by Ellie View Post
                          Littlesister Is your brother taking Riluzole?

                          I'm going to disagree somewhat about taking Baclofen to stop fasciculations (sorry mate 😘) as it doesn't act on the root cause of the fasciculations themselves and, if your bro doesn't need an antispasmodic drug like Baclofen, it could cause problems.

                          Gabapentin and pregabalin are often used to treat them and some people find CBD oil gives relief. xx
                          Ellie, I was given Pregabalin for serious back pain. I took it for two weeks to see if my system got used to it but it made me very sleepy so I stopped it. I’m on codeine now and have to take 2 paracetamol with 1 x 30mg codeine before bed and in the middle of the night. GP gavel me something for the constipation that codeine always causes,

                          I was told that Pregabalin works to calm nerve endings.
                          Lynne x
                          Last edited by Lynne K; 2 November 2021, 14:29.
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                          I'm staying positive and taking each day as it comes.

                          Comment


                            #14
                            Originally posted by Lynne K View Post
                            I was told that Pregabalin works to calm nerve endings.
                            Yes, both Gabapentin and Pregabalin act on nerve pain. xx

                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            Comment


                              #15
                              richard fab idea - he can have the tonic and I'll have the gin. keno thank you, he's trying quinine at the moment. Lynne K I've passed the names of the medication on to Big Bruv. Thank you all.

                              Comment

                              Working...
                              X