Today I'm getting my third new pump. I'd say I'm ham fisted except these days it's more limp scrag end! ππ€£ππxx
-
Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Scrag end. I remember that word from the butcher's. It's a weird one. Where on earth is a scrag end anyway?when i can think of something profound i will update this. -
I bet they love you π€Originally posted by matthew55 View Post
Is it the same fault or part which keeps breaking π€ππ
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
-
Strange noises and talking in rhymes ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
-
OK, enough about you, I asked about the pump π€£π€£π€£π€£ πOriginally posted by matthew55 View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
-
Lol. I've heard Salt n pepper amongst other things πΆπππ xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
-
You sure it's the pump π€£ππwhen i can think of something profound i will update this.Comment
Comment