I woke at 4.30am with a partial laryngospasm. Partial in that my airway wasn't completely blocked but still difficult to breathe and it took much longer to subside than before (about half an hour). I don't know what caused it as I was asleep when it started. It has always been caused by choking on a small amount of liquid before. Has anyone else experienced this? Inability to breathe has always been my major fear since childhood when I used to get bad asthma.
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Originally posted by Rosemary6NT View PostI don't know what caused it as I was asleep when it started. It has always been caused by choking on a small amount of liquid before.
Do you remember if your neck was supported, head lolled back or in an odd position?
I need to have the head of the bed raised, the pillow pulled right under my neck my shoulders to hold my neck (throat) in a good position to swallow throughout the night. I also take meds to reduce saliva during the day.
Love Ellie.
โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Thanks all. I have to sleep on my right side (because I have a painful bursa in my left hip which screams when I'm on my back), so flat with a neck supporting memory foam pillow. I don't have a hospital bed yet so can't easily adjust my position. I'm thinking it must have been a stray bit of saliva or phlegm. I was ok last night so hope it's not going to be a regular occurrence. I will be getting a hospital bed in a couple of weeks when we have made room but do hate sleeping on my back. Maybe it won't be so bad when I can raise my top half. I don't feel I've got too much saliva unless I start thinking about it, then I have to keep swallowing, but it doesn't last!Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
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Rosemary, I donโt know the term laryngospasm, but wonder if itโs the same as one of my early symptoms when it felt like my throat was going into spasm upwards and remained locked like that for a few seconds before subsiding. Most uncomfortable and alarming. Is that the same as the term stridor? XxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
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Heather R Hi Heather, stridor is the rasping sound produced when trying to breathe/inhale through closed vocal folds. I'm not sure if what I was experiencing is the same as you. Here is a video simulation, I hope it's not too frightening xx
Dr. Robert Bastian of Bastian Voice Institute explains laryngospasm with video of the larynx and a simulated attack.For Part 2: Straw Breathing, go to our en...
Last edited by Rosemary6NT; 7 November 2021, 17:09.Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
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Originally posted by Heather R View PostIs that the same as the term stridor?
โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
โ
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Ooh, me too: salt, vinegar and one end dipped in garlic sauce, yumm. I used to love a well cooked, proper chip, am salivating just thinking of them... ๐๐โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
โ
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