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Fireworks and navel gazers

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    #1

    Fireworks and navel gazers

    This year I discovered that I can only see fireworks on the ground, and too close for comfort. Rockets are definitely out which saddens me more than I can say. Isn't MND/ASL simply the best? πŸ˜‰πŸ˜œπŸ˜πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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    #2
    Rockets were set off last night around here Mathew. I could only see a few. Too many really loud bangs happened late on and still going when I got in bed around 11, x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

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      #3
      I confess to disliking fireworks. I think of all the poor frightened animals.😏πŸ’₯πŸ’₯
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​
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        #4
        Originally posted by matthew55 View Post
        This year I discovered that I can only see fireworks on the ground, and too close for comfort. Rockets are definitely out which saddens me more than I can say. Isn't MND/ASL simply the best? πŸ˜‰πŸ˜œπŸ˜πŸ˜xx
        Sorry for your sadness Matthew....πŸ€—
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​
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          #5
          I can't complain as I loved them when I was young
          It's all funny
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            #6
            I never grew up πŸ˜πŸ˜πŸ˜‚πŸ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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              #7
              Originally posted by matthew55 View Post
              Rockets are definitely out which saddens me more than I can say.
              If you had a spaz chair like mine, you could've just gone outside, reclined, and enjoyed the show for as long as you wanted - every cloud... πŸ˜‰πŸ˜

              That was how I had a ringside seat for the Perseids meteor shower this summer πŸ‘πŸ‘

              Jokes aside, I'm sorry you can't rocket-gaze and I empathise, as a fellow navel gazer 😘😘😘😘
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user              .
              ​
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                #8
                My passion was firing them myself. Although I did have professionals do displays at two of my weddings. πŸ˜‰πŸ˜…πŸ˜˜πŸ˜xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  #9
                  Originally posted by matthew55 View Post
                  My passion was firing them myself.
                  Ah, I guess using your teeth is out of the question then 😁😘
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user                  .
                  ​
                  • 👍 1

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                    #10
                    Originally posted by matthew55 View Post
                    I did have professionals do displays at two of my weddings.
                    We made our own fireworks at our wedding πŸ˜‰πŸ˜‰πŸ˜πŸ˜πŸ˜˜

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user                    .
                    ​

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                      #11
                      Some things are best unsaid 😏😜❀️😍xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        #12
                        Dont think you have to explain πŸ˜‰
                        when i can think of something profound i will update this.

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