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    Dressing for easy urination

    Up to now and since diagnosis, I have been wearing elasticated waist trousers that are easy for my carer to pull up and down (I'm arm onset).

    I'm now losing my mobility and it would be good if I could use a urine bottle to collect my pee whilst I'm sitting down.

    Do any of the panel have fashion tips?
    Warmly


    Andy

    ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 50% left arm and 90% right arm, plus other bits including left shoulder– Campaign contact Winchester and Southampton branch, and trustee of the Association

    "Things turn out the best for people who make the best of the way things turn out"

    #2
    I have never been happier since I have had my catheter fitted 😁🤗🌞😎xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

    Comment


      #3
      Hi Matthew

      I'm presently continent and do not really want to go to a catheter until I have to and my consultant won't let me have a supra pubic catheter fitted until I get much worse and have a gut port fitted at the same time.
      Warmly


      Andy

      ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 50% left arm and 90% right arm, plus other bits including left shoulder– Campaign contact Winchester and Southampton branch, and trustee of the Association

      "Things turn out the best for people who make the best of the way things turn out"

      Comment


        #4
        You're a lucky man. I was sick and tired of getting up to pee five or six times a night. I fill a 2 litre bag every night and I'm still continent. 😉🤗😁😎xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

        Comment


          #5
          "Penis envy" is something I never thought I would have had until struck with ALS. Getting my other half up 3 times a night to transfer to commode/loo is fast becoming an unbearable chore for us both! I have been discouraged from having a catheter because of possible UTI's

          Comment


            #6
            Hello Nunhead man................Albert only wears shorts, no undies, he's been on a P bottle for about 18 months now.................he buys the ones from M&S, the nice jogger type - wide leg about £15 a pair.................3 colours

            Fran Cotton also does a long leg jogger with fly so he has them for when he gets out anywhere................he doesnt wear undies with these either

            The bottles have been a godsend to him

            Sue
            Husband Albert diagnosed PMA Feb 21

            Comment


              #7
              I have had my catheter for a while and so far not a single infection. Seriously consider getting one.
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

              Comment


                #8
                Originally posted by Rosemary6NT View Post
                I have been discouraged from having a catheter because of possible UTI's
                Rosemary, if you want a catheter, get a catheter. It's your decision.

                Yes, there is an increased risk of UTIs but those risks can be lessened substantially by following hygiene guidelines and drinking lots of water. xx

                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                Comment


                  #9
                  Hubby wears very baggy elasticated joggers. When he needs a wee we pull them forward and put the bottle in place and he has a pee sitting down.
                  He did have urinary sheaths for a while but they use to back up and then he would require a wash and change.

                  Comment


                    #10
                    Ellie thank you. I will consider it

                    Comment


                      #11
                      I wear loose clothing now re ease of use. Often a size up meaning they often defy gravity lol.

                      Can I ask at what stage did those with a catheter choose it was the right time? I'm 6 months post diagnosis but about 2yrs symptom onset. I am finding it harder to stop accidents occuring.
                      Diagnosed May 2021 bulbar onset als.

                      Comment


                        #12
                        Well when I got mine I was peeing little often and slowly. I can still pee but the simplicity of the process means I'm never going back. 😉😁😘😍xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                        Comment


                          #13
                          Originally posted by shelly21 View Post
                          I am finding it harder to stop accidents occuring.
                          Then it's time Shelly...

                          Unless it's an overactive bladder, in which case your GP can prescribe meds which may help. xx

                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          Comment


                            #14
                            Hello there

                            Originally posted by Music man's wife View Post
                            Hubby wears very baggy elasticated joggers. When he needs a wee we pull them forward and put the bottle in place and he has a pee sitting down.
                            He did have urinary sheaths for a while but they use to back up and then he would require a wash and change.
                            Thank you – we will have a try at this this afternoon and see how it goes.

                            I guess the problem with urinary sheaths was that the bottle was to smaller volume for the amount of urine over time hence the backup?
                            Warmly


                            Andy

                            ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 50% left arm and 90% right arm, plus other bits including left shoulder– Campaign contact Winchester and Southampton branch, and trustee of the Association

                            "Things turn out the best for people who make the best of the way things turn out"

                            Comment


                              #15
                              Originally posted by shelly21 View Post
                              I wear loose clothing now re ease of use. Often a size up meaning they often defy gravity lol.

                              Can I ask at what stage did those with a catheter choose it was the right time? I'm 6 months post diagnosis but about 2yrs symptom onset. I am finding it harder to stop accidents occuring.
                              I’m 4 years since diagnosed and waiting for a suprapubic catheter. I can still use my walker to get free my RR chair to my powered wheelchair then go to the loo independently. But it’s getting harder as my hands are weak and legs on the way out. But I’m determined to be independent for as long as possible xx
                              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                              I'm staying positive and taking each day as it comes.

                              Comment

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