News to me

[Deb]

I told you before, ice cubes in Pimms don't count 😉😍😍😘

Oh no! that's where I've been going wrong ! 😘🤗🍹😂xx

[denise]

Yes deb. I agree. Ellie is right. 🤭

[Ellie]

When we are at home I sip water all day.

I told you before, ice cubes in Pimms don't count 😉😍😍😘

[Deb]

So true about staying hydrated. When we are at home I sip water all day.

I don't drink enough, if at all , when we go out because of the difficulty in using the loo and I often feel weaker and tired. Xx

[Ellie]

🤔 No, residential mains tap water is fine to go through a tube. I filter mine as it's that hard you could walk on it 😍

[matthew55]

Are we more vulnerable with MND? All my life I have drunk out of the tap. It's all going to the same place, and bottled water is a rip off. 😉💦😁😍xx

[Ellie]

I've always used cooled boiled water. Am I ok using warmed tap water?

Warmed tap water being cold tap water (mains) with added boiled water/microwaved for a few secs or tap water from the hot tap? Only safe drinking water should be put through the tube.

Mains water is generally OK, if it's very hard water the feeding tube and plastics may suffer over time, so maybe use a filter jug (I do as I live in a hard water area) xx

[Heather R]

My dietician said you don't have to worry about boiled water at home, only in hospital where there are so many dangerousus germs around x

[denise]

I've always used cooled boiled water. Am I ok using warmed tap water? 🤔

[Ellie]

I can't have very cold water down my tube as it's much more likely to reflux up - too much of an aspiration risk for me.

Glad your cold 'drink' stays in your stomach Heather R xx

[Heather R]

I heard of someone who had warm water down their PEG, but I find cold water makes me feel I am having a refreshing cold drink (down my throat), lovely x

[Olivia H]

Very much agree, always notice my balance is worse if I haven't drank much water/fruit juice/green tea too now🙂

[matthew55]

I get a banging headache if I get too dehydrated. Nature's alarm system. 🤕⏰🤣❤️xx

[Ellie]

Lots of ppl think they drink enough however probably don't.

+1 👍👍

[Ellie]

As a complete aside, but observation...do people feel they deteriorate/symptoms are worse when not drinking or taking in plenty of water?

Dehydration, even mild dehydration, affects everybody in so many ways and, if that dehydration becomes chronic, i.e., sustained, then I've no doubt it impacts on our health.

You'll see me always banging on about hydration, hydration, hydration 🙄 particularly for secretions, constipation, digestion, sleep, cramps and twitching. Water is a Wonder Drug 😏 xx