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  • Deb
    replied
    Originally posted by Ellie View Post
    I told you before, ice cubes in Pimms don't count 😉😍😍😘
    Oh no! that's where I've been going wrong ! 😘🤗🍹😂xx

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  • denise
    replied
    Yes deb. I agree. Ellie is right. 🤭

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  • Ellie
    replied
    Originally posted by Deb View Post
    When we are at home I sip water all day.
    I told you before, ice cubes in Pimms don't count 😉😍😍😘

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  • Deb
    replied
    So true about staying hydrated. When we are at home I sip water all day.

    I don't drink enough, if at all , when we go out because of the difficulty in using the loo and I often feel weaker and tired. Xx

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  • Ellie
    replied
    🤔 No, residential mains tap water is fine to go through a tube. I filter mine as it's that hard you could walk on it 😍

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  • matthew55
    replied
    Are we more vulnerable with MND? All my life I have drunk out of the tap. It's all going to the same place, and bottled water is a rip off. 😉💦😁😍xx

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  • Ellie
    replied
    Originally posted by denise View Post
    I've always used cooled boiled water. Am I ok using warmed tap water?
    Warmed tap water being cold tap water (mains) with added boiled water/microwaved for a few secs or tap water from the hot tap? Only safe drinking water should be put through the tube.

    Mains water is generally OK, if it's very hard water the feeding tube and plastics may suffer over time, so maybe use a filter jug (I do as I live in a hard water area) xx

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  • Heather R
    replied
    My dietician said you don't have to worry about boiled water at home, only in hospital where there are so many dangerousus germs around x

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  • denise
    replied
    I've always used cooled boiled water. Am I ok using warmed tap water? 🤔

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  • Ellie
    replied
    I can't have very cold water down my tube as it's much more likely to reflux up - too much of an aspiration risk for me.

    Glad your cold 'drink' stays in your stomach Heather R xx

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  • Heather R
    replied
    I heard of someone who had warm water down their PEG, but I find cold water makes me feel I am having a refreshing cold drink (down my throat), lovely x

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  • Olivia H
    replied
    Very much agree, always notice my balance is worse if I haven't drank much water/fruit juice/green tea too now🙂

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  • matthew55
    replied
    I get a banging headache if I get too dehydrated. Nature's alarm system. 🤕⏰🤣❤️xx

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  • Ellie
    replied
    Originally posted by LindaB View Post
    Lots of ppl think they drink enough however probably don't.
    +1 👍👍

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  • Ellie
    replied
    Originally posted by Olivia H View Post
    As a complete aside, but observation...do people feel they deteriorate/symptoms are worse when not drinking or taking in plenty of water?
    Dehydration, even mild dehydration, affects everybody in so many ways and, if that dehydration becomes chronic, i.e., sustained, then I've no doubt it impacts on our health.

    You'll see me always banging on about hydration, hydration, hydration 🙄 particularly for secretions, constipation, digestion, sleep, cramps and twitching. Water is a Wonder Drug 😏 xx

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