💙Hospice and well being, weekly activities💙

[LindaB]

• Fatigue Management
• Pain Management
• Medical Q&A
• Breathlessness

These are some of the activities/groups my local hospice provide; which I think is amazing. Mostly zoom sessions however some face to face.
Part of their well-being programme.
My view is it's well worth being in contact with your local hospice to access a range of support.

[matthew55]

Mine is still locked down

[John D]

Agreed Linda. Have a zoom relaxation session tomorrow then a full review in person with the hospice palliative team on Friday.

[richard]

I am due to have my first hospice visit in the next few weeks, not as an in patient but to attend something they call Living Well.

I am looking forward to it and shall share my views in due course.

RICHARD

[LindaB]

Mine is still locked down

I think most are Matthew however should still be providing community support and zoom sessions. Worth checking👍🏻😉

[LindaB]

John D & richard hope both go well 👍🏻💙

[Mary C]

Hi Linda, My local hospice provides No daycare at present.There is a team that will do home visits and phone calls.
MND A do zoom monthly support groups in my area.
I also have MND volunteer and monthly psychologist session on zoom.
All in all I am well supported
Mary

[LindaB]

Mary C good to know you're well supported. Does your hospice undertake activities via zoom? Seems to differ area to area 🤔

[Ellie]

... a full review in person with the hospice palliative team on Friday.

Will Friday be the first time you meet the team John? xx

[Ellie]

I am due to have my first hospice visit in the next few weeks, not as an in patient but to attend something they call Living Well.

Sounds good Richard, looking forward to your feedback 👍👍😘

[John D]

Ellie No. Have been to see members of the team more often than I care to remember. Phyllis Tuckwell who have a branch in hospital grounds

[Mary C]

LindaB
In response to your question no I don’t think the hospice is doing zoom meetings at the moment.I was desperate after diagnosis to meet others who live with MND but covid messed that up.So I really was glad MND A run zoom support groups which enabled me to see and talk to others in similar situations.Sadly people disappeared off the support groups leaving me wondering if they were too unwell to continue or had passed away.Also it can be sad to see people deteriorating physically .I have enjoyed sharing with this little group and we maintain humour as we discuss all sorts of topics a bit like on this forum.
Best wishes
Mary

[LindaB]

Mary C thanks for that sounds like the MNDA support group has been helpful for you , albeit with some sadness when group members leave & seeing the progression of mnd.
Isn't humour amazing....even in the darkest times 💙
Take care 🤗

[shelly21]

I am also a lucky one. My local hospice is fully open. I have done a 8 week once a week session on neuro conditions. It allowed me to see others progression which yes sad but also makes it real. I love my visits. I have weekly physio there as nhs not offered it me. I also have the odd massage which is appreciated.

Today we had a flower arranging day. even with a weak hand i managed to take part.

20211118_132033.jpg

[Ellie]

Very impressive flowers shelly21

Lovely colour cupboards, wherever they are 😊 xx