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Botox for saliva

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  • PeterPan
    replied
    matthew55 If I just had an occasional dribble, I'd be happy. I often have a full-on flood when I open my mouth, and sometimes my weakened lips can't hold it back! Glycopyrronium had a drastic effect on my gut, so that was no good. Amitriptyline and a Hyoscine patch don't seem to achieve anything... and now Botox has been a disappointment too. I’ll ask if radiation treatment is an option when I go to hospital next week.

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  • matthew55
    replied
    There is no magic bullet for saliva. I use glyco Bromide and mansive tissues but I still occasionally dribble. 🤔🤣😁😜xx

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  • Heather R
    replied
    John D I think my dad insisted on Izal toilet paper, good strong stuff! x

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  • Ellie
    replied
    Originally posted by PeterPan View Post
    I had 100 units in total. “30 units of Xeomin botulinum toxin was injected into each parotid gland and 20 units of Xeomin botulinum toxin was injected into each submandibular gland.” No idea if that’s a full dose!
    Yep, that's the full dose, unfotunately...

    • parotid glands: 30 units per side, 0.6 ml per injection • submandibular glands: 20 units per side, 0.4 ml per injection.

    Really hope somebody comes up with a solution for you Peter. xx

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  • John D
    replied
    I had radiotherapy which worked for a while but as muscles In my in lips have weakened saliva is escaping again. Considered botox but decided not to follow through after discussing with medics. Patches seem to work for me 2nd time around with Atropine occasionally.

    Wish I had shares in a tissue making company. In fact I worked for one years ago if you remember IZAL.

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  • PeterPan
    replied
    Originally posted by Ellie View Post
    Oh Peter, that's so disappointing for you 😟

    They gave you the full dose, did they, and not a conservative 'first-time' dose? xx
    I had 100 units in total. “30 units of Xeomin botulinum toxin was injected into each parotid gland and 20 units of Xeomin botulinum toxin was injected into each submandibular gland.” No idea if that’s a full dose!

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  • Lizzie
    replied
    Thanks for your comments Peter. I appreciate it . Lizzie x

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  • Lizzie
    replied
    Sorry that last comment went on the wrong thread 🥴

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  • Lizzie
    replied
    Thanks for the reassurance Ellie 😊 x

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  • Ellie
    replied
    Originally posted by PeterPan View Post
    The bad news (for me) is that it hasn’t worked!
    Oh Peter, that's so disappointing for you 😟

    They gave you the full dose, did they, and not a conservative 'first-time' dose? xx

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  • Ellie
    replied
    Originally posted by matthew55 View Post
    Radiotherapy didn't cost me anything. ​​​​​
    It might not have cost you anything but it cost the public purse more than Botox.

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  • PeterPan
    replied
    Originally posted by Lizzie View Post
    I’m due to have Botox injections for excess saliva next week. I’ve heard that the injections are very painful. Has anyone had any experience of this, and is any form of anaesthetic used during the procedure? Thanks,
    Lizzie x
    Hi Lizzie, I had Botox injections three weeks ago. The good news is it’s not unduly painful at all. Yes, you can feel the four injections, but really not a problem. No injections in the mouth, all done from the outside. The bad news (for me) is that it hasn’t worked! I’m going into hospital for a respiratory assessment next week and hopefully they can fix that. I’d say, don’t worry about it and I hope it works for you first time!

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  • matthew55
    replied
    Radiotherapy didn't cost me anything. It's a simple procedure. You get fitted with a mask then you go and get the x-rays.
    ​​​​​

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  • Ellie
    replied
    Originally posted by Lizzie View Post
    I’ve heard that the injections are very painful.
    I guess different people have different pain thresholds but my friend, who had regular Botox into her salivary glands, never mentioned they were painful. It worked very well.

    I had Botox in my legs and the needle itself was tiny, so I felt nothing.

    If you're anxious, I'm sure they'd happily apply a topical numbing cream on your skin. They wouldn't give treatments if particularly painful without anaesthetic, would they, in case you'd hop around the place as they tried to inject you 🤔

    Radiation treatment is more involved and more expensive.

    Good luck Lizzie xx

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  • Lizzie
    replied
    I must say Matthew that I’m getting through loads of tissues.
    I haven’t been offered radiotherapy. It hasn’t been mentioned. I’ve had the usual meds...Atropine, Hyoscine patches, Amitriptyline, but none have worked, so Botox is what I’ve been offered.🤔

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