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My new crib

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    My new crib

    I just saw the plans for my new pad. Wheelchair accessible, wet room and Gerber loo fitted. I will even have neighbours who need care. Oh and I will also have a spare room if anyone wants to visit me. Still got a bit of a wait but it's certainly worth waiting for. πŸ°β™ΏπŸ€„πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Matthew thats really good, long time coming, BUT that's got to make you feel a bit more at ease?
    Husband Albert diagnosed PMA Feb 21

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      #3
      Definitely. Just looked at Google maps and it's a lovely road. 🌳🌼😁😍xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        Oh that is good new matthew55 Any idea when it'll be yours? 😘😘
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          #5
          Not really but hopefully after new years πŸŽ‰πŸŽŠβ€οΈπŸ˜˜xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            That sounds great matthew55 . So pleased for you xxπŸ˜˜πŸ€—πŸ™‚πŸ₯³

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              #7
              matthew55 that's brilliant news....will hopefully make life a little easierπŸ˜‰πŸ‘πŸ»
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                #8
                Hi Matthew , is it a new build? Have you had a definite offer now?
                Sounds great
                Best wishes
                Mary

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                  #9
                  matthew55 sounds great

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                    #10
                    The lady living there at the moment is waiting for her new place to be adapted then my new place will be completely stripped out to build the wet room and widen doors as well as ramps. It's not a new build but it will be new if you see what I mean. β›„πŸšΎβ™ΏπŸ€—xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      #11
                      That's great news Matthew and an awesome way to start the New Year. Fingers crossed that it doesnt take too long.
                      Last edited by Petey; 22 November 2021, 20:43.

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                        #12
                        Fantastic news😊 House party?πŸŽ‰πŸ 

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                          #13
                          Brilliant news. Cant wait to hear more. πŸ₯°πŸ˜˜πŸ€—
                          when i can think of something profound i will update this.

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                            #14
                            Wow Mathew, great news xx
                            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                            I'm staying positive and taking each day as it comes.

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                              #15
                              So glad for you to have that in sight Matthew x
                              Diagnosed July 2020, ALS bulbar onset.

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