I just saw the plans for my new pad. Wheelchair accessible, wet room and Gerber loo fitted. I will even have neighbours who need care. Oh and I will also have a spare room if anyone wants to visit me. Still got a bit of a wait but it's certainly worth waiting for. π°βΏππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Matthew thats really good, long time coming, BUT that's got to make you feel a bit more at ease?Husband Albert diagnosed PMA Feb 21 -
Definitely. Just looked at Google maps and it's a lovely road. π³πΌππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Oh that is good new matthew55 Any idea when it'll be yours? ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Not really but hopefully after new years ππβ€οΈπxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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matthew55 that's brilliant news....will hopefully make life a little easierπππ»Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Hi Matthew , is it a new build? Have you had a definite offer now?
Sounds great
Best wishes
MaryComment
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matthew55 sounds great
Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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The lady living there at the moment is waiting for her new place to be adapted then my new place will be completely stripped out to build the wet room and widen doors as well as ramps. It's not a new build but it will be new if you see what I mean. βπΎβΏπ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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That's great news Matthew and an awesome way to start the New Year. Fingers crossed that it doesnt take too long.
Last edited by Petey; 22 November 2021, 19:43.Comment
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Fantastic newsπ House party?ππComment
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Brilliant news. Cant wait to hear more. π₯°ππ€when i can think of something profound i will update this.Comment
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Wow Mathew, great news xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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So glad for you to have that in sight Matthew xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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