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    Another thing down

    Found out today I cannot sit on the floor anymore. I tried and fell over backwards. πŸ˜πŸ€—πŸ˜‹πŸ˜‚xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    matthew55 could you get up again??
    Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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      #3
      Originally posted by matthew55 View Post
      Found out today I cannot sit on the floor anymore.
      You're 56, why on earth would you want to sit on the floor in the first place?? 😏😍😍😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
      .
      ​

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        #4
        It's getting up from the floor I find near impossible....πŸ™„

        Hope you didn't injure yourself matthew55
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          And being stuck on the floor is no goodπŸ˜• Weirdly, if I kneel upright, and 'walk' along on my knees I can do that...but try to walk using my feet, a different matter!πŸ˜‘ x

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            #6
            Originally posted by Olivia H View Post
            Weirdly, if I kneel upright, and 'walk' along on my knees I can do that...but try to walk using my feet, a different matter!
            Isn't that odd Olivia H it can be your party piece πŸ˜‰πŸ˜πŸ˜˜
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
            .
            ​

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              #7
              I managed to crawl to my bed and got on. I was trying to fix my suction machine. No injuries other than my pride. πŸ˜‚πŸ˜πŸ‘πŸ˜xx
              ​​​​​​
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #8
                Lol Ellie for sureπŸ˜„ Shall I be practising for Matthew's house party😁

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