My social services OT has told me that they don't do knee supports. Chocolate teapots come to mind. π«βπ€πxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
matthew55 my ankle support came from a Neuro rehab OT/physio....do you have that kind of team in your area? Or maybe the hospice team OT/physio?
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
I agree, if possible ask a physiotherapist.
Are you interested in rekindling a relationship with Salford MND Clinic? I know you said you feel they've forgotten about you but you could email them if you wanted... Or not. ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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